ekelly's blog

  • let me fight myelofibrosis

    FormerMember
    FormerMember
    hi all my name is eileen i have myelofibrosis and have been told its terminal by the heamotologest and nothing can be done except blood transfusions and pain relief. i have just been reading part of this amazing site. i have actually found some other people that have this. i pray they will get in touch God willing. what has knocked me a bit is these people are getting chemo or other treatment to help them fight it. i…
  • myelofibrosis

    FormerMember
    FormerMember
    i have been diagnosed with myelofibrosis since may 2008 and connot find anyone else that has this rare disease. if anyone out there has or knows anyone who has this could they please get in touch. myelofibrosis is a blood disease that eventually becomes acute leukemia and for some reason cannot be treated and have been told by my consultant its terminal. idont know how long i have had it but do know by the symtoms its…