When Christmas isn't all it's cracked up to be

3 minute read time.

Well, it's Christmas Eve and another Christmas nearly over, thank goodness.  At least we've got the 'run-up to Christmas' behind us now.  It seems to go on for ever and ever these days - a month or more when we're expected to be excited, jolly, anticipatory, full of fun etc etc.  And now we've entered a fortnight of enforced inactivity because the country practically closes down for what is laughingly called the 'festive' period.

So, do I sound like a Scrooge?  And if so, why?  There are people over in the incurables group who know, or assume, that they are approaching their last Christmas, and most of them seem resolved to make it as fun a time as possible, surrounded by family and friends, pulling crackers and party poppers, and stuffing themselves with turkey and mince pies with the best of them.  I admire these people more than I can say, but I can't share their attitude.

So why am I not like them?  I think this might well be my last Christmas, and that simply fills me with gloom.  Why should it make me determined to be happy?   I don't feel happy, my dear husband doesn't feel happy either.  Actually, we feel b ****y miserable this year.  And the Christmas cards don't help.  You know the ones where the sender has written 'have a wonderful Christmas!' (these are people who know that I'm ill).  Sorry, what's wonderful about it?  Why don't they stop to think about how that might strike us?  How can we have a wonderful Christmas with the sword of Damocles hanging over our heads?  The more sensitive correspondents say something like 'we hope you have a pain-free Christmas', or a 'cosy and quiet Christmas'.  Life is not a lot of fun at the moment - pain-free, cosy and quiet is probably the best I can aim for.  I am not receiving treatment just now, and my feeling is that the cancer has spread quite a bit since the last scan.  I'm in some pain (not a lot); have continuing and awful bowel issues so that some days I can't leave the bathroom; and I am excruciatingly tired most of the time so that my activities are very limited.  It occurred to me today that this combination of conditions, shared by many cancer patients, is another sort of PTSD.  Instead of Post-Traumatic Stress Disorder, we have Pain, Tiredness, Stress and Diarrhoea.  This PTSD has made me feel quite depressed in recent days, and I've had some crying jags and periods of feeling like I just don't want to carry on like this.

I have a scan booked, finally, for 29th December, and will be seeing my consultant on 8th January.  I don't know what will happen at that appointment - depends on the results of the scan, I guess.  We were discussing chemo last time, but at present I really don't feel well enough to undergo chemo.  We'll have to see what the consultant advises.

Having had my little rant about Christmas, John and I are making a token effort.  We have put up a Christmas tree and hung a wreath on the front door, bought a turkey and Brussels sprouts on a stalk, wrapped presents and put them under the tree, and hung up some fairy lights and displayed the Christmas cards (even the 'wonderful Christmas' ones).  I even sent John out today to buy some cheap red wine and cinnamon sticks so we can have mulled wine and mince pies while we open the presents.  We will be spending Christmas Day on our own.  We had been invited by one of John's daughters and also by a very kind friend and her family to join them for the Christmas meal, but neither of us feels that we would add to the general jollity of the occasion - in fact, rather the reverse.  Also, I feel safer at home, bathroom-wise.  We will be seeing John's other daughter, partner and the granddaughters later, but not on the day itself.  I know that the phone will be ringing all day long with family and friends checking up on us, so we won't exactly be lonely.

So it only remains for me to wish all my readers a happy and peaceful Christmas, and even a wonderful one if they are so inclined!

Anonymous
  • FormerMember
    FormerMember

    Oh hunny, your blog touches me and feel your pain. Although I no longer have too much in the way of physical pain, my emotional pain is still immense. The memories torture me, and Christmas seems to drag it all up again. We too have had a quiet day. I cannot do the stress of it all now. In fact my daughter and I spent a good part of the day at the yard mucking out! It was normal stuff and very pleasant. I send you warm hugs and blessings, and hope the day was as you wished it. Love to you xxx

  • FormerMember
    FormerMember

    Hi, i totally get your post!! My mum is terminal and deteriorating. I decided to take Christmas to her, she is finding walking etc difficult, but she lives in a ground floor flat, so easier for her to manage. She's only 63! I too am fed up of the 'have as good a Christmas as you can, oh, and all the best for 2015'!! She has at most 3months the oncologist thinks, so, no it isn't going to be a good 2015! Unfortunately some people don't understand, and though i wanted mum to have a lovely Christmas with family, i didn't particularly wantto 'do' Christmas, just cry at what's to comes! sorry to be pessimistic, just dreading the future. :/

  • FormerMember
    FormerMember

    Hi I also totally understand your post. I am 46 and have 2 teenage boys and a husband I love to bits. I am recently diagnosed as incurable (lung mets from 2nd bowel cancer) and am on my first palliative chemo treatment. Only my husband and I know about the incurable bit - we aren't going to share until the results of the first scan - good or bad. I am mostly positive - positive that I have a couple of years, positive that I can remain relatively healthy for some time, positive that when friends and family are told I know they will be devastated because I supposedly beat the bugger last year with colorectal cancer. We had my mum, dad and 87 granddad for Christmas and had a "jolly time" BUT I wobbled privately and shed a few tears thinking I may not have a few years and this could be my last Christmas - who the hell knows.

    My thoughts are that you should feel how you want to feel, don't stop and do what you want to do - celebrate or not, smile or scowl. I am only spurred on by my instinct to protect my sons - if I didn't have them I'm not sure how positive I can be, there will be times when I just want to be angry at everything and everyone, there will be times when I am going to be miserable without explanation.

    I believe that everyone on this forum is feeling the same or similar way on occasions and we want to support you and each other in any way we can. This is the only place I can be honest right now and it helps so much. I hope your Christmas went how you wished.

    Take care of each other

    Diane x

  • FormerMember
    FormerMember

    I can really understand how you feel Jane. I felt under enormous pressure to make this Christmas a good one for all the family and it was tough. I didn't fair so well with the new year and spent a lot of new years eve in tears. I felt so sad and sorry for myself; everyone was looking forward to the year ahead full of hope and optimism for a good one and yet mine is filled with so much uncertainty.

    I'll email you with the rest of my news Jane...

    Love

    Annette x

  • Hi, Jane. I'm sorry to read that you are feeling so down. I read your blog when you posted and wasn't sure how to reply. Which is a dilemma many folks have when talking to us, so it figures we may have difficulties talking to each other when our situations are different. You have been and are a great source of encouragement to me, your honesty and pragmatism are refreshing. It saddens me to feel how low you are at the moment. I think the emotional strains of the disease and its vicious treatment are grossly underestimated. I suspect you have both forms of the PTSD, excellent use the acronym!

    The festive season is always difficult as it always feels like a performance, and there is so much pressure to "make the perfect Christmas" . I've spent a few of them with an ailing husband. Just wanted to bury my head til it went away. Better lately though, but it's only up to me now! My love to you both. Mary. X