When Christmas isn't all it's cracked up to be

3 minute read time.

Well, it's Christmas Eve and another Christmas nearly over, thank goodness.  At least we've got the 'run-up to Christmas' behind us now.  It seems to go on for ever and ever these days - a month or more when we're expected to be excited, jolly, anticipatory, full of fun etc etc.  And now we've entered a fortnight of enforced inactivity because the country practically closes down for what is laughingly called the 'festive' period.

So, do I sound like a Scrooge?  And if so, why?  There are people over in the incurables group who know, or assume, that they are approaching their last Christmas, and most of them seem resolved to make it as fun a time as possible, surrounded by family and friends, pulling crackers and party poppers, and stuffing themselves with turkey and mince pies with the best of them.  I admire these people more than I can say, but I can't share their attitude.

So why am I not like them?  I think this might well be my last Christmas, and that simply fills me with gloom.  Why should it make me determined to be happy?   I don't feel happy, my dear husband doesn't feel happy either.  Actually, we feel b ****y miserable this year.  And the Christmas cards don't help.  You know the ones where the sender has written 'have a wonderful Christmas!' (these are people who know that I'm ill).  Sorry, what's wonderful about it?  Why don't they stop to think about how that might strike us?  How can we have a wonderful Christmas with the sword of Damocles hanging over our heads?  The more sensitive correspondents say something like 'we hope you have a pain-free Christmas', or a 'cosy and quiet Christmas'.  Life is not a lot of fun at the moment - pain-free, cosy and quiet is probably the best I can aim for.  I am not receiving treatment just now, and my feeling is that the cancer has spread quite a bit since the last scan.  I'm in some pain (not a lot); have continuing and awful bowel issues so that some days I can't leave the bathroom; and I am excruciatingly tired most of the time so that my activities are very limited.  It occurred to me today that this combination of conditions, shared by many cancer patients, is another sort of PTSD.  Instead of Post-Traumatic Stress Disorder, we have Pain, Tiredness, Stress and Diarrhoea.  This PTSD has made me feel quite depressed in recent days, and I've had some crying jags and periods of feeling like I just don't want to carry on like this.

I have a scan booked, finally, for 29th December, and will be seeing my consultant on 8th January.  I don't know what will happen at that appointment - depends on the results of the scan, I guess.  We were discussing chemo last time, but at present I really don't feel well enough to undergo chemo.  We'll have to see what the consultant advises.

Having had my little rant about Christmas, John and I are making a token effort.  We have put up a Christmas tree and hung a wreath on the front door, bought a turkey and Brussels sprouts on a stalk, wrapped presents and put them under the tree, and hung up some fairy lights and displayed the Christmas cards (even the 'wonderful Christmas' ones).  I even sent John out today to buy some cheap red wine and cinnamon sticks so we can have mulled wine and mince pies while we open the presents.  We will be spending Christmas Day on our own.  We had been invited by one of John's daughters and also by a very kind friend and her family to join them for the Christmas meal, but neither of us feels that we would add to the general jollity of the occasion - in fact, rather the reverse.  Also, I feel safer at home, bathroom-wise.  We will be seeing John's other daughter, partner and the granddaughters later, but not on the day itself.  I know that the phone will be ringing all day long with family and friends checking up on us, so we won't exactly be lonely.

So it only remains for me to wish all my readers a happy and peaceful Christmas, and even a wonderful one if they are so inclined!

Anonymous
  • FormerMember
    FormerMember

    Thanks for your comment, Mary. I'm currently in hospital (long story, subject of next blog post, no doubt), so am only relying on phone with tiny screen and uncertain signal.

    What amazes me about you is how you can keep that wonderful sense of humour coming after all you've been through. What an example to the rest of us!

    love, Jane

  • Hi Jane,

    I have been thinking about you & sorry to hear that you are having such a rough time of it. Christmas is such a difficult time for many, and the expectations of others don't help. But really, it is just another day. I hope your pain is being managed & that you have access to ongoing & timely support. 

    Anyway, I just wanted you to knoe that I am thinking of you</p>

    Love 

    Liz x

  • Hello again Jane. Sorry you're now a guest of Hotel NHS. That's a turn up, I look forward to the next instalment. I hope James Martin is your chef up there, otherwise you may starve on sarnies and cup-a-soup! Need your vitamins, and the morphine! Personally, I like a good Bourbon, and I'm gonna treat myself. Not had a snifter for months, hands are trembling! Much love, Mary.

  • FormerMember
    FormerMember

    Hello Liz, how sweet of you to think of me. How are you doing these days? Do let people in the AC group know how you are. I do still read their posts, though don't contribute. Yes you're right - Christmas Day is just another day. Anyway it's all over now, except that I have the minor frustration of not being able to dismantle the Christmas tree before Twelfth Night, as I'm still stuck in hospital, thus storing up bad luck for the rest of the year. Not that I'm superstitious, you understand!

    With best wishes, Jane

  • Hi Jane I found this link by just playing around really.I'm sorry your not to good,I hope you'll continue your blogs so we on ac can keep updated.I had a quiet Christmas with just my old dad who spent most of the day in bed and didn't get dressed haha .last year at this time I was waiting for my colonoscopy to confirm the surgeons suspicions so didn't make a big deal of it.Anyway enough about me.Take care look after yourself,Carla xx