I found out on Tuesday that the cancer has returned. I am gutted.
Had MRI and CT routine although did have lower back ache and dull pains in pelvis. Colerectal surgeon said could be nerve endings due to the pelvic exenteration and if continued would scan me. Then suggested I have routine scan as everyone has been focusing on my bowels due the reversal.
Had MRI April and found out suspicious lymph but could possibly be infection, monitor CT scan. Had to wait a few weeks for that and then that cam back and confirmed cancer. Had appointment on Tuesday and was told now not curable but they would be looking to control it. Cancer in lymph nodes of pelvis and pelvic aorta. Pelvic MDT advised chemo. Went back on Thursday to see what Gynae MDT said and they agreed. Cancer also found in lymph node in chest and possible bone in my spine!
Taxol and Carboplatin treatment 6 cycles over 18 weeks. They have also offered me a place on the CIRRCa Trial that is being run. I am numb.
I did look into cyberknife as already had radiotherapy to the pelvis but I have been advised that even though it is pin point accurate it still has to pass through radiated tissue. I would be interested to speak to anyone who has had cyberknife on a previously radiated area. Anyone who has had or going through the Taxol and Carboplatin and or the trial.
I seem to be in business mode where I am just dealing with and processing facts and no emotion. My husband and I have talked and said we want to remain positive and not spend any of our time crying and getting upset. I hope that I can stay this strong. I feel guilty that he is having to go through this. I am scared at the outcome and I don't want to leave him.
Anyone any advice or suggestions?
Lou x
