Down but not out!

1 minute read time.

Well it has been 6 weeks (yesterday) since I had my ileostomy reversed and currently there is not much change.

Throughout the whole of this cancer experience I have NEVER felt as low or sad as I have at times during this 6 weeks. My poor husband has had to put up with floods of frustrated tears and I have felt really low. Luckily these sessions don't last long but when they are happening it is horrible.

As a rule I tend to get on top of things and chose to be positive and deal with things well but I have been housebound for 6 weeks and can't see me getting out and about any time soon. I was told it was not going to easy but nothing could have prepared me for feeling like this.

Whilst on some days the frequency has lessened there is no rhyme or reason and if I have a good day and tell someone about it the wrath of the God of the ileostomy reversal the following day is bad, apparently he does not like boasting!!

The lowest point so far has been the delivery of nappy type pads, they are all the fashion apparently for 38 year old ladies having just had their ileostomy reversed!!

I have been told by others that things will get better and I am sure that they will.

Mine is by no means the type of experience that everyone would have, my consultant has said due to my previous bowel operation and radiation damage my reversal might not work but I selfishly needed to get this off my chest. If you are reading this ahead of having one please bear my history in mind and don't let my experience put you off.

I hope to be back on here in a few weeks showing off how well things have improved so please cross your fingers for me.

Have a lovely weekend

Lou

Anonymous
  • FormerMember
    FormerMember

    Hi Lou,

    My tumour was very low in the rectum and it wasn't enough to get a clear margin so I opted for the permanent clostomy. So for me there'll be no reversal and in a way I have just accepted the baggy life and suppose it's an easier option than yours.

    It's a very big decision to go for a reversal and certainly not to be taken lightly but if you hadn't tried then you'd beat yourself up and wonder what ifs along the way. So now you're on the other side of the reversal with an unsure and anxious time ahead of you. BUT YOU GO GIRL, COME ON, you've got this far so being stuck in with pads and urgency rushes to the loo and oops accidents is just not going to beat you eh!! Easy for me to say I know, but you will get there. And if in the end you have to go back to baggy at least you gave it a bloody good go so my hat goes off to you (if I had one).

    I'm willing your bowels to behave and my fingers, toes and even my bag is crossed for good luck.

    Take care and keep us informed

    Jan xxx

  • FormerMember
    FormerMember
    Hi Lou You are allowed not to always be positive. Sometimes it is hard work! You have been through so much and have done so well. I am sure you are not going to let this get the better of you. It's just a bleep you will master it. I am sure you will be back telling us how you have mastered it very soon. In the mean time if you need to wear the pads ( all the fashion, I believe)in order to get out do it. As Janbo said Go Girl Go Love and hugs Dianne x
  • FormerMember
    FormerMember

    Hi Lou,

    I am trying to not panic ahead of my reversal, but reading your blog I know this is one of the potential outcomes.

    I do hope your situation sorts itself out, and that things improve greatly. I may becoming to you for advise if I end up in the same shitty boat!

    Tight Lines

    Tim xxx