Not even a spoonful of sugar

2 minute read time.

You know, one of the worst experiences of my adult life was feeding my father spoonsful of yoghurt in hospital and watching it dribble out of his mouth again. (He didn't have cancer; he'd had a stroke.) I didn't like him, never did, but it's a fact that he was a highly successful businessman, good at almost everything he did - other than getting on with his family - very much respected by his peers, and even after he got Maxwelled (publishing term) he carried on working with the Parish Council and his church. And then the stroke, and then this.

All of which was brought to mind by this morning's delightful breakfast of Muller rice (apple; I don't really like any of the other flavours), eaten very slowly, in half-spooonsful, so as not to burn my gullet or worsen the pain in my chest - which is drastically exacerbated if I try to eat or drink anything cold. It's actually not too bad at present, but we're treading warily. As pains go, it's not much fun, and it did have me wondering whether I should call it to the attention of the chemotherapy team. (Recent events notwithstanding, I have to be practically at death's door before I make a fuss. I know this is unwise.)

So. Muller rice. Yum. Is it any wonder that Mr Crab occasionally uncoils and demands a big plate of steak and chips?

I've had to give in to him a little, btw. He needs meat, and wouldn't give me any rest until he got it. So he's had a few bits of chicken, some ham, and a tiny bit of Quiche Lorraine. That's 35 years of strict vegetarianism and another 10 of fish-eating down the drain. But, I suppose, what does it matter in the end?

Chemo yesterday was not too bad, all things considered; we got there a bit early, and they managed to work a little faster than is sometimes the case - that "sometimes the case" does occasionally include gaps of up to an hour where they seem to have forgotten us altogether - so we got out not much after 6 in the evening, by which time most of the commuter traffic had died down. The main problem yesterday was my veins. It took them at least six tries - possibly seven - and three nurses before they could get a cannula in. It really can't go on this way, not if, as Judy says, I have months of this chemo ahead of me; I'll have to get a PICC line, or one of the alternatives. Again, not something that makes me want to do a little happy dance, but ... it's cancer. You do what you gotta do.

Anonymous
  • FormerMember
    FormerMember

    Oh Hilary ....... your description of your father's dribbling his yoghurt was very much me after my surgery - indeed for quite a while afterwards too, it was a case of ' where's a bib when you need one ? ' especially when I graduated onto tomato soup ! Those were the days, as someone once sang.

    Afraid that I can't say that any of the Muller rices would make a very appetising breakfast though ....... maybe some yoghurt ( not freezing cold ) would feel a bit more soothing ? Hilary, do ask for some of that mouthrinse stuff called Mugard ....... it's supposed to help prevent / relieve sore mouths brought on with the teatments. Unfortunately I can't say if it works or not as they didn't offer me anything apart from Oramorph when the damage was already done ........

    Mr Crab is demanding meat now ? Funny how our diets and preferences change, I have actually gone off the thoughts of any red meat now - mainly because I can't manage it - but will tolerate mince in a pasta ( the protein is essential for healing, they tell me )

    Here's hoping that your chemo sessions go better without all the pain of ' hunt the vein ' for the canulas - I remember it well and one time broke into tears because the Blood Nurse hurt so much ( mine was for blood tests only, by the way ) So maybe the PICC line will be an improvement ? I do hope so, Hilary ...... and here's to you getting that seat at the Boss's concert !

    Love and hugs, Joycee xxx

  • FormerMember
    FormerMember

    Just sending some big hugs Hils.

    Your story of hunt the vein brings back too many painful memories!

    Odin xxx

  • FormerMember
    FormerMember

    I don't know, what is it with basic training for nurses?Loads of them on my chemo ward had degrees but very few could hit a vein first ime. One of them actually said I had "lovely juicy veins" - at which I almost threw up, being vein/blood/ artery/generally  phobic  - but that clearly didn't assist them.

    Sorry to read that your chest is still hurty & that Mr. Crab is demanding alien victuals. Still, if you can keep something down, however distasteful previously, then it's a little victory, which can't be bad. As you say, you do what you gotta do.  

    Hang in there, we don't have much choice with crabface.

    Love & hugs,

    xxx

  • Hi Hilary.I didn't like my dad either and he didn't much care for any of his family.Whatever he or your dad was I think to see a man who appeared so strong and successful reduced to having to be fed and dribbling is a sad and terrible thing to witness.When you feel so awful I guess it's just eat what and when you can and I think you should speak to the chemo team maybe there is something they could suggest something helpful.Ask for the line,how is it when they come at you with needles they say just a little scratch then stab and dig around then when they make a mess of it blame you for your veins being awkward. I hope that things start to go better for you and very soon.You deserve that seat at the concert and invite onto the stage too much love and huge hugs Cruton xxx
  • FormerMember
    FormerMember

    Hello Hilary and friends. i had a similar experience with my dad last October/November. Again, a very strong man with a big personality, always been 'in charge' at work and a bully at home. He was reduced to the teaspoonful meal too: having been a big (meat) eater it was very peculiar and disturbing to see. I came to realise only recently that neither of my parents were the kind of people I'd choose to be around. Weird. Hilary, I'm sorry you are still in pain. Hope it improves soon. xxxx