Not even a spoonful of sugar

2 minute read time.

You know, one of the worst experiences of my adult life was feeding my father spoonsful of yoghurt in hospital and watching it dribble out of his mouth again. (He didn't have cancer; he'd had a stroke.) I didn't like him, never did, but it's a fact that he was a highly successful businessman, good at almost everything he did - other than getting on with his family - very much respected by his peers, and even after he got Maxwelled (publishing term) he carried on working with the Parish Council and his church. And then the stroke, and then this.

All of which was brought to mind by this morning's delightful breakfast of Muller rice (apple; I don't really like any of the other flavours), eaten very slowly, in half-spooonsful, so as not to burn my gullet or worsen the pain in my chest - which is drastically exacerbated if I try to eat or drink anything cold. It's actually not too bad at present, but we're treading warily. As pains go, it's not much fun, and it did have me wondering whether I should call it to the attention of the chemotherapy team. (Recent events notwithstanding, I have to be practically at death's door before I make a fuss. I know this is unwise.)

So. Muller rice. Yum. Is it any wonder that Mr Crab occasionally uncoils and demands a big plate of steak and chips?

I've had to give in to him a little, btw. He needs meat, and wouldn't give me any rest until he got it. So he's had a few bits of chicken, some ham, and a tiny bit of Quiche Lorraine. That's 35 years of strict vegetarianism and another 10 of fish-eating down the drain. But, I suppose, what does it matter in the end?

Chemo yesterday was not too bad, all things considered; we got there a bit early, and they managed to work a little faster than is sometimes the case - that "sometimes the case" does occasionally include gaps of up to an hour where they seem to have forgotten us altogether - so we got out not much after 6 in the evening, by which time most of the commuter traffic had died down. The main problem yesterday was my veins. It took them at least six tries - possibly seven - and three nurses before they could get a cannula in. It really can't go on this way, not if, as Judy says, I have months of this chemo ahead of me; I'll have to get a PICC line, or one of the alternatives. Again, not something that makes me want to do a little happy dance, but ... it's cancer. You do what you gotta do.

Anonymous
  • FormerMember
    FormerMember

    My dad was a git and lived off gin, cider and complan. Thankfully I didn't have to feed him any of those things and he had the decency to shove off to helll (my guess) at what I did not think was young until I hit 40 and now 48 seems way too young haha. Sorry, you didn't need to know all of that. I am glad you are managing to keep down a muller rice. Please tell nurses. They do stuff. I started out on the martyr don't say anything, cope with paracetamol etc but in the end she said that looks awful, no prizes for martyrs, everyone else at your stage is dosed up their eyeballs on morphne and the like so do it. I did. I think you are being too stoical.

    Are you sur that zoomorph isn't something else? your tossing bits of chicken etc at Mr Crab did make me think of feeding time at the zoo... lizard, tiger? what do you fancy?

    I hated my PICC and danced the happy dance when they took it out (in my head, I could barely walk, never mind dance) It was good for chemo, transfusions etc and the like though they need a special nurse to take blood from it which was a right pain and a lot of the time they said Oh can we just do it in your arm? So much for that.  I had a pump attached to it for some of the time toowhich made life rather inconvenient. Actually cancer does inconveninece one in so many ways so sod it and get oneI say, unless you are a shower fiend cos you can't get them wet.

    sorry, too tired and can't even remember what you said now. I do know I care about you and don't want you in pain and able to enjoy a few things so get it sorted if you can.

    Biggest of hugs to you

    Little My xxx

    ps can i make a stink about your ticket to see the Boss? I play a good cancer card when I want to :)

     

  • FormerMember
    FormerMember
    Oh Hils, you are really going through the mill at the moment but you are "sounding brighter". Keep those boxing gloves on (you can take them off to eat your muller rice or you may dribble too) and keep strong. Big hug xxxx
  • FormerMember
    FormerMember

    You can shower with a PICC line - just get a rather stylish bin bag type thing to put it in (or wrap it in cling film).  I was told to shower daily - to reduce the odds of infection - then had a line put in which took all the fun out of it :(

    Speak to one of your chemo team about your pain.  No prizes for being a martyr, and it won't benefit anyone if you're in enough pain you can hardly eat anything.

  • FormerMember
    FormerMember

    Hi Hilary:

    Don't they insert ports in the UK?  I wasn't sure I wanted one at first but I'm so glad they insisted.

    I just had the most horrific experience getting an IV inserted for a CT scan and it made me realise how this could have been the way it went every 3 weeks for chemo!

    I respected my dad, and yes in retrospect I guess I loved him too.  I am so sorry that your relationship with yours was not so good and yet you were still there for him when he needed you.  He and your Mum obviously did something right.

    Sending you positive vibes and healing hugs.  Hang in there girl!

    Pam

  • FormerMember
    FormerMember

    Hils,  I am just going to send you lots of hugs and spoons,  I hated standing by the sink on chemo days with my hand in very warm water, praying that my vein would pop up and become available for the nurses, I would stand there smiling at the ladies already hooked up and the nurses rushing past or stopping every so often to see if the warm water was working, it made me feel a bit like the new girl at school standing waiting to join the class!!!!

    Much love 

    Ruby x