Ovarian cancer - New to the community

i just thought i would say hello and welcome to the site - i dont oftepost on here but i do read the blogs and forum as often as i can- i am sorry to hear that you are feeling so low- but this is wonderful place to visit when feeling high or low-there are lots of people here that will listen to you and know what your going through - my cancer is different to yours but there will be others on here that have the same or similar to yours - the waiting is what gets every one - i have read so many times that it is the waiting that is the worst - i myself find it extremely difficult waiting for the results of tests so all i can say is hangon in there babe - try to give yourself a goal each day and then maybe you might be able to motivate yourself into doing a bit more each day - if that makes any sense - anyway - take care - lots of hugs and welcom - karen -xoxo

hello lurker ;)

sorry to hear you are feeling so down and worried

i ve never heard of CA125 - but i get the gist of what you mean .............i am wondering though ....could the chemo have knocked the count extra low? and then now months later its settlng at a new "normal" count ???? ....... and swollen lymph node ...... youve prob got a little infection ......... you know like if youve got sore throat and swollen"glands" in your neck? ...................... i sure hope so AND at least if there is anything "lurking" it can be found and sorted - yes?

good luck with your results hun - will keep my fingers crossed for you

big ((((HUG)))

xNx

Hi chic.....I was diagnosed with stage 3c ovarian cancer in 08 also. I tend not to take very much notice of the CA125 test, for me that started at 138 and when my cancer was at its worst the count dropped to 68. The last CA125 was 19 and it is now 32, so I don't rely on that and neither does my consultant. I am due for a scan on Tuesday. Like normally says you could have an infection. Take care hun and don't count your chickens just yet......love Carol x

Hiya!

Good advice from Carol!  Like her, I was diagnosed with stage 3c in 2008 - CA125 was 4000 before surgery then plummeted.  When I relapsed last year, my CA125 went up to 28, then dropped to 4 after 1 cycle of chemo, so the oncologist doesn't always bother with it nowadays!  It really is just an indicator.  As you say, the worst thing is the waiting for results - in fact, I was amazed how much time we spend waiting - for tests, for scans, for results . . .  and have you ever had an appointment happen on time  (mine was over 2 hours late yesterday!).  Just don't let the gremlins take over while you're waiting - read a book, watch TV, go out for a walk.  Hope you get good news on Monday.  Love, Kate xxx

hiya! it's frustrating is'nt it hun! i was diagnosed on march 09, went through countless tests, oveary removal and then complete hysterectomy. After that got the news there was no disease detected on my ct scan. Now 10 months after op and i've started feelin pretty crappy! had ca 125 done, results came back normal and was told if i was worried, go and see my gp! thanx for the concern i thought' so on frIday i'm off to the doc. you need to keep your mind occupied! Think positive thoughts and watch loads of funny rom coms. Hope you get good news     xx sam xx