Ovarian cancer - New to the community

1 minute read time.

I have recently joined the community but have been "lurking" (is that the right word?) for a couple of days.

I think you're all amazing.

Unfortunately I am not new to cancer.

I was diagnosed with stage 2 ovarian cancer in October 2008. I had a CA125 of 348 before my hysterectomy. This level dropped to below 5 after my 2nd chemo dose and stayed there until Nov 2009. It's now on the increase and something is off, scans show a growing lymph node but no cancer elsewhere, or so they think. It's the waiting and not knowing that is getting to me. I have great faith in my doctors though I would prefer not to see them at all, but I feel emotionally empty. I don't think  I can get any lower.

My CA125 is still normal but has gone up to 15, CT scans are inconclusive so there is no plan. I feel my cancer is returning and I'm just sitting around letting it do it's worst. I had a PET scan yesterday and find out the results of that on Monday, whilst I wait I just fill the gap with made up details that are so dark. I just can't get a positive head on me at all.

Anonymous
  • FormerMember
    FormerMember

    Hi I am living with ovarian cancer too. l was diagnosed in 2001 my ca 125 was 1250 and am still going strong. l am now on my fourth round of chemo and doing ok. my c125 results have always been acurate up untill this time because my chemo has been changed  they are going up instead of down, so we are relying on ct scan. every one has given you good advice so l wont add to it. just wanted to give you my support. i hope you get good results on monday. love Rosie

  • FormerMember
    FormerMember

    hiya hun , i too had ovarian cancer in 2004,monday must seem ages away for you,i dont take much notice of ca125 like so many ppl on here as there can be so many reasons why it can change,trying to keep busy is a good idea but sometimes easier said than done but keep talking to people on here im sure you will find it helps it certainly helped me.hoping you get good news on monday,take care dawn x