my storey miss digonised again..my name is dawn & am 35 yrs old,my storey starts back last november,i noticed a small lump at the top of my belly,so when to my g.p he said oh its a hernia no scans just felt the lump an said hernia,he advised me to loose weight and it will repair its self,6 months down the line the lump ad grown, went to a specialst he said also hernia no scan was performed just really both doctors guessing what i had,my lump was huge now,back to my g.p a month later,this was in may 2008,he prescribed weight loss pills go on a strict diet and exercise,so tried another month passed by now in the past 4 weeks my belly (only my belly) had grown double a ad put on 3 dress sizes in just 4 wks,back up tp my g.p,still kept saying hernia,by this stage beginng of june 2008,i could barely walk,he still wouldnt give me a scan so begged to get admitted and said no just go to the local hospital and see if you can get aappointment for an ultrasound scan,they take about 2 weeks,told him there is no chance i could go on another 2 weeks,he said get the scan done then we take it from there,they would not even give me a date for my scan ring you when a appointment comes available,whent home annoyed feeling low,very next day just couldnt deal with pain anymore so when to accident emergency,got amitted straight away put on a drip,given pain killers,few days later had a c.t scan,and the truth come out i had 2 cysts on each overies then a 3rd 1 on my uterus plus that measured as if i was 3 months pregnant (was not pregnant) the small cyst was 4cm the 2nd cyst was 10cm and the whopper cyst was 33cm and weighed 4 stone,the consultants said it was a possibilty i would have cancer,day of my op they would send it down for quick frozen,30th june 2008 had my operation,had the cysts was removed drained 15 liters of mucinous fluid also had a sub total hysterectomy,results come back no evidence of malignancy,we were all over the moon,3 months down the line had a letter on thursday 18th 2008,for an appointment on monday 22nd 2008,went along thought it was a mistake,no it was not a mistake,i was told i had 1st stage cancer,couldnt beleive what i was hearing,start my chemo 1st october 2008,if the results come back from the lab correctly on 30th june i would have received my chemo already,so iam 3 months down the line starting it,very very annoyed with the care i have received in my g.p and the 2 hospitals.
FormerMember
Utter, utter disgrace that you should have been exposed to such incompetence in a service you have PAID for, in the allegedly 4th richest country in the world.
I am new to this too, as I have just been told I have incurable Stage IV cancer but -get this - they cannot locate the source of it. My immediate reaction is to instruct everyone I know (particularly blood relatives) to RUN, not walk, to the doctor's if they ever find anything amiss, AND INSIST on scans at the earliest possible date. We DO have rights; we DO NOT have to put up with so-called experts making us feel as if we are stupid.
Check out the people here -there are some pretty gritty, tough people around who will welcome you fully and make you realise you are not alone.
At the moment, and for years now, obesity is the stick they beat us with. I smoked for 12 years, and no doctor even hinted that I should consider giving up. I gave up of my own accord and without any outside help, except a kind pharmacist who gave me a liquorice root to chew in the early stages. I put on weight, and the nagging began. Over the years, the received wisdom is that whatever your symptoms, if you are overweight, that is the cause and the disease.
I had major bowel surgery, and when I got home, I was quite careful for a while, then when I was healed, I carried on doing the things that women do, laundry, shopping library, and gave myself a post op hernia. The nurse consultant and surgeon check out the weight gain and say they can't operate until I have lost several kilos. OK, but it wasn't the weight that caused it, and if I have the repair, how do I stop it coming back?
I've discussed this before, so solutions are in hand, but why they hand you over to the Diet Industry when sensible eating is the only successful way to get back.
You have had a terrible experience, and should give serious thought to making a major complaint to your Primary Care Trust. They are the ones responsible for giving us proper care from our GPs.
Were you referred to the specialist by your GP? You should get a copy of the referral letter.
Maybe you could consider suing. I'm not saying you need to go the whole hog, but a solicitor's letter to the PCT may make them take your case seriously. They commission the Hospital care as well, so it is worth going for. Then your solicitor would compile your papers and make a case. Or he would refer you to a personal injury lawyer.
The specialists don't bother with a case unless they think they can win. Make sure they go for costs as well as the settlement. You don't want to have to pay your own costs out of the settlement.
I cannot believe what I have just read. That is appalling my heart goes out to you.
I trust when you are feeling up to it, after your chemo, you will take the g.p. and hospital to task. This is just not good enough. I really am lost for words, which is unusual for me!
I wish you all the very best through your chemo. Please keep intouch so that we can support you through it.
lol and (((((((((((hugs))))))))))))))
Debbie and Robbie xxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxx
thanx for ur reply,with out a doubt iam taking on the 2 hospitals plus my g.p was doing it any way 1st put my compliant in 3rd of june,but know after finding tha out monday 22nd sept am even more determined,how very dare the mess with peoples lives,not only my live as it effected every 1 round me,i got 5 children,and iam going to fite the doctors just as much as iam going to fite this awfull disease,keep you informed next week when i start chemo,best wishes dawn......
yes i was suing the hospital plus my g.p any way 1st put my compliant to my solicitor 3rd of june 2008,but after what i got told monday 22nd,iam so much more determined to take them all the way i can,going 2 fite them just as much as iam going to fite this awfull disease,how dare they mess with peoples lives,it effects every1 round you,i got 5 children,that as effected alott as they 3 of them are at an age they understand,the 2 little 1s dont,their ages are,6,9,12,15,19,so they will see something is up when iam feeling well after chemo(if i do hope i sail threw it)thanx for your reply,will keep you informed thanx best wishes dawn....
