Very mixed feeelings

1 minute read time.
Haven’t blogged for a while now. I think I had been running on autopilot for the four months, it seems more like years, that G has been having his treatment in Germany. Then, after being told that the tumour is clinically dead, to have him being rushed into hospital with acute kidney failure just when we thought he could look forward to a period of remission, has bought home to me just how fragile his the situation is. He is not cured, and we have no idea how long the remission period will be. Now, I feel physically and mentally drained. This vile disease has changed G so much. He copes by denying he is ill, and has become so introspective, and distant that I feel l have lost the man he was, and now there is a stranger in his place. We spent Christmas with our daughter and her family. It was so nice to be with our grandchildren but the unspoken question as to whether G would be with us next year hung over us. I found it so difficult to keep up a pretence of being happy for everyone, when what I rally wanted was to have a good cry. Until now, I have managed to be fairly positive and take things a day at a time: suddenly it is all too much.
Anonymous
  • FormerMember
    FormerMember

    Hi Daffie,

    I know how you feel as when my husband was diagnosed I felt he totally pushed me away!  Hang in there and try and be strong as you have obviously been up to now.

    My toughts and love are with you

    Hugs Stacey

  • FormerMember
    FormerMember

    Hi Daffie, how can i put this, do you not

    think G has let his cancer consume his

    thoughts, if you can put yourself in his

    place, you have been told you have cancer, you go thru the treatment, then

    your told your in remission, just getting

    used to being told that then BANG you

    have kidney failure , and your thinking

    what the hells going on here, you put

    on your deniel face to your loved ones,

    but inside your head all you can think

    about is this rotten disease that's taken

    over your life, you cant think about anything else, but you cant talk about it.

    So you withdraw, not noticing your wife

    and family are suffering this  cancer

    with you. Daffie does G not talk to you

    about his feelings, maybe his thinking

    that by pushing you away he cant hurt

    you or himself with the way his emotions are right now,but his keeping all this inside and that's not good. Daffie sit G

    down and make him listen to you, tell

    him how its making you feel being shut

    out, that you want to be there for him

    no matter what you both have to face.

    Together you can take one day at a time,

    but you cant do this on your own if his

    not prepared to let you in. When i was a

    cancer nurse i would try and put myself

    in a Patient's place, well inside his head

    really , how would i feel if it were me, all

    the anger, pushing away there loved ones,even taking it out on the nurses

    looking after them, and i came to the conclusion it was FEAR, it grips the whole

    of you and you cant show people, so

    you push them away. Daffie im not

    saying im right but i do know that's how

    i would feel.

    With Love Lucylee. xx

  • FormerMember
    FormerMember

    Hi Daffie & Stacey - I'm right there with you both. I wonder how many other spouse/caregivers are experiencing this same phenomenon. It's so Cold where we are.

    Thank you, Lucy Lee, for your comments. They are helpful.

    WARM Hugs to you all.

    Love, Mo

  • FormerMember
    FormerMember

    lucylee how can i put this? I know your comments were well meant.I have done nothing but put myself in G's place for eighteen months now.  Life has been one long rollercoaster of hopes and disappointments.  I have no support.  Everything is directed at G and no one seems to appreciate that little by little, the cancer is killing me too. I am mentally and physically exhausted.

  • FormerMember
    FormerMember

    There is an expression in one of the world's great religions: "Take Care of the Caregiver".  

    The Caregiver cannot be forgotten, otherwise the whole thing falls apart. Are you doing things for yourself? Do you have family or friends around to lend their support? You cannot do this alone. I have found that the people on this site have helped me enormously. They just about saved my life. We are here for each other. I have sent you a "friend" request.

    Please let me know how you're doing.

    Love, Mo