Community News - Macmillan Online Community

My cancer, my sexuality, me.

Just a couple of weeks back I was fortunate enough to have the LGBT foundation get in touch asking if we’d be interested in hearing from a friend of theirs, David, who was diagnosed with cancer last September. David wished to share with us his story about being a gay man and facing cancer – fortunately, David's recent chemotherapy treatment has been successful! David’s story makes for an extremely heartfelt and eye-opening read, from a perspective perhaps shared too little on the Community. Here it is… My nephew – he’s 12 – and I, are in Brighton Museum and Art Gallery. We find ourselves in front of a large TV screen. There’s a film about the partial decriminalisation of homosexuality which took place in 1967. He’s curious and open minded (a credit to his parents, I say), and he watches…

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"...your reply filled me with strength and a feeling of support. I'll be back!"

In today’s Community News piece, I thought I’d share with you all just a handful of the feedback recently received for our Community cancer forum – feedback myself, Ellen and Jess see day in, day out on the site. The Community’s such an invaluable source of support for people affected by cancer, and the below speaks volumes for you, our Community members, who are the ones sharing your experiences; talking to those who need a listening ear; and offering support and comfort to those who need it most. Enjoy the read, and if you’ve a positive story from the Community you’d like to share, go ahead and do so using the comments section below. “…I'm always so heartened to see the amazing support this little community gives.” “There's lots of support on this group. It is amazing. Sending love…

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Ovarian Cancer Awareness Month

March is Ovarian Cancer Awareness Month, so to recognise this I’ve been speaking with three members of our Ovarian cancer group, and asked them to share with the Community a little about their experiences, and any tips they might have on coping. If you’ve had any thoughts or an experience with ovarian cancer you’d like to share, go ahead and do so in the comments section below. 'My main difficulty was telling people I loved...I felt guilty...' Posie: “My diagnosis came at the beginning of November 2018, and it was a shock. I attributed many of the symptoms I was suffering to the ageing process and long walks with our new puppy. Once diagnosed things moved very quickly as I was on the two-week plan, no appointment should take longer than two weeks from request to seeing a health care…

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Congratulations to Kate, our volunteer radiographer...

"I feel really privileged to be in a position to provide support to people." The above quote speaks for itself as to the time and generosity Kate – our radiographer expert, has given to Macmillan’s Community the past three years. Here’s one of our Cancer Information Nurse Specialists, Kim, to tell you a little more as to why congratulations are in order for Kate: Each year the Macmillan Volunteer Awards celebrate our amazing volunteers around the UK. These awards offer the chance to say a huge thank you for the time, care, expertise and commitment our volunteers so generously give. We’re excited to announce that Kate, one of our professional volunteers on Ask an Expert , has won an award this year. Ask an Expert is available through the Macmillan Online Community and provides people the…

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Wellbeing Wednesday tips: February

In case you missed it, earlier this year we introduced ‘Wellbeing Wednesday's’ – the day of the week where we bring to you our weekly tip on improving your wellbeing; be helping improving sleep, coping with stress, or a couple of mindfulness tips to help you look for the positives throughout the day. It’s last day of February today, so here’s a summary of our tips to date: Mindfulness: Mindfulness is the basic human ability to be fully present, aware of where we are and what we’re doing, and not overly reactive or overwhelmed by what’s going on around us. Mindfulness is a skill. It requires work like any therapy and practice like any skill. You can find out more on the MIND website here . What was good about your day? Finding the good on the bad days can be hard. Trying to find…

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"I make a habit of crying. I consider myself to be quite good…”

One of our Wellbeing Champs here at Macmillan, Nat, recently shared with me a blog she wrote on how she discovered it was alright to be sensitive, to be emotional – to cry. The above follows Nat’s recent “rollercoaster of a mental health journey”, as she describes it – and whilst Nat’s story might not directly relate to cancer, I hope you perhaps read this and think that whatever you might be going through right now, it’s alright to feel emotional, to be sensitive, perhaps overwhelmed or even angry. The Community’s a place for you to share, talk about and help each other cope with these emotions – so go ahead and share! I was taken back to my 4th year at junior school, 5 days residential today for the first time in 30 years. As I stood in the school hall waiting for the coach to arrive…

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"I was not a man in my 60’s or 70’s – I was a 34 year-old female!"

Gina was diagnosed with lung cancer at just 34. She's kindly shared with the Community her experience of being diagnosed, and the shock and impact being diagnosed with cancer had on her at such a young age. If, like Gina, you were diagnosed with cancer at a young age, go ahead and share your experiences with us in the comments section below. You might also like to visit our Diagnosed at a young age group to talk about and share your experiences with others of a similar age. If you saw me walking down the street, it wouldn’t cross your mind that I have lung cancer would it? However, I am a growing statistic that seems to lack an awareness. It is becoming more and more common for young women to be diagnosed with lung cancer. Often, they have never smoked – so the usual red flags are out the…

Former Member
I forgot to be ME

Lindsay, known to much of our Community as Leolady56 , has been an avid member and Community Champion for a couple of years now. Just a couple of months ago I discovered that outside of the Community Lindsay’s involved in a fair few rather interesting hobbies – something you’ll shortly read about further. In addition, she’s also the founder of the ever popular Walking back to Happiness thread, where members share their walks, or any outside excursions they might’ve recently been on with the group. Given this, I thought it good idea to ask Lindsay about her hobbies, and how they helped her cope with cancer. The response? These hobbies reminded Lindsay to be herself. You are all going to have to forgive me for a few sentences.......You see the; ‘I forgot to be ME’ started a long time ago. …

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"Nowhere to turn? How I discovered the Online Community..."

Last month Gina, one of our Online Community Champions, shared with the Community part of her cancer journey, specifically interactions with family, friends and colleagues. The blog was called “Most of us just want normality!”, and if you haven’t already read it, it makes for a really thought provoking read. Gina’s back this week to tell us how she discovered the Online Community when she most needed it, and how it’s helped her to date. Enjoy! I got my diagnosis on the last appointment of Maundy Thursday. I left the consultants office in a daze trying to make an understanding of what had just been said and what it would all mean. Initially, when I got the appointment at that time, I felt relief, it meant I would have 4 days off to digest and process what I had been told. To compose myself…

Former Member
Arts, crafts and coping with cancer

"…it gave me better pain relief than any drug could ever do.” Facing cancer arguably takes a lot of energy, and naturally it becomes a central focus of someone’s life. But this doesn’t mean hobbies or pastimes, including arts and crafts, need to fall to the wayside. Such hobbies often provide a vital escape to where cancer is no longer the central focus, but rather your enjoyment and perhaps solace in whatever hobby or pastime works for you. You might already be aware of this, but our Community has various threads dedicated to arts, crafts and other hobbies members are involved in that they find beneficial when facing cancer. I asked members of these threads to tell me how arts and crafts has helped them... “I’ve quite a history of arts and crafts, I pastel paint (but haven’t for a while…

Former Member
"Always trust your gut instinct" - Colleen's story

Colleen got in touch with the Community team a couple of months ago to share with us her experiences following her appendix cancer diagnosis. Colleen’s story offers not a great insight into what is a rare cancer, but also the emotional impact diagnosis had on her and how she reacted. If you’ve been affected by appendix cancer, why not share your experiences in the comments below. So, on being woken on a Friday night in March ’17 with what I can only describe as a pain that I hadn’t experienced before – it wasn’t excruciating, I just knew something wasn’t right... Trip to the out-of-hours service and following a couple of tests I was sent home – the pain went the Saturday, only to return the Sunday, and I was due to fly to Barcelona Monday. So off back to the out-of- hours service, and…

Former Member
Navigating life after losing a loved one

Having recently lost her grandmother, Marie got in touch with myself and the team to share some tips and advice that helped her cope with the loss. Off the back of this, she agreed to put a blog together in the hope that it might be a source of support to users of the site who've perhaps lost a loved one to cancer. Losing someone you love inevitably means reframing your life in some respects. When you’re grieving and in the process of learning new ways of thinking and acting, your world can feel crushingly complex, especially if you need to make sizable lifestyle adjustments. Consider this practical advice for finding your way through major transitions without becoming overwhelmed. Workplace woes Returning to work after losing someone you love can be extremely challenging, especially…

Former Member

Awake and up all night?

We know that cancer can sometimes cause sleepless nights. Join our Cancer Chat forum for some company here in the 'Awake and up all night' thread.

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