Community News - Macmillan Online Community

"Always trust your gut instinct" - Colleen's story

Colleen got in touch with the Community team a couple of months ago to share with us her experiences following her appendix cancer diagnosis. Colleen’s story offers not a great insight into what is a rare cancer, but also the emotional impact diagnosis had on her and how she reacted. If you’ve been affected by appendix cancer, why not share your experiences in the comments below. So, on being woken on a Friday night in March ’17 with what I can only describe as a pain that I hadn’t experienced before – it wasn’t excruciating, I just knew something wasn’t right... Trip to the out-of-hours service and following a couple of tests I was sent home – the pain went the Saturday, only to return the Sunday, and I was due to fly to Barcelona Monday. So off back to the out-of- hours service, and…

Former Member
Navigating life after losing a loved one

Having recently lost her grandmother, Marie got in touch with myself and the team to share some tips and advice that helped her cope with the loss. Off the back of this, she agreed to put a blog together in the hope that it might be a source of support to users of the site who've perhaps lost a loved one to cancer. Losing someone you love inevitably means reframing your life in some respects. When you’re grieving and in the process of learning new ways of thinking and acting, your world can feel crushingly complex, especially if you need to make sizable lifestyle adjustments. Consider this practical advice for finding your way through major transitions without becoming overwhelmed. Workplace woes Returning to work after losing someone you love can be extremely challenging, especially…

Former Member
"Most of us just want normality" - Gina's story

This week one of the latest additions to our Community Champions team, Gina (Ginajsy), has kindly put some words together for the Community detailing her experience and interactions with family, friends and work colleagues following her cancer diagnosis. It makes for an interesting and really thought provoking read. When you are diagnosed with cancer, along with all of the angst, confusion and shock one of the biggest questions us cancer patients have to contend with is, are we really open about our diagnosis and tell everybody? Or do we keep it a secret? Both options have their pros and cons and if you opt to tell everyone, you cannot then take it back. Knowing I would have to have chemotherapy, I assumed (incorrectly) I would automatically lose my hair and I would also need several weeks…

Former Member
International Volunteer Day - Julia's story

Today marks International Volunteer Day , and to recognise this Julia, who’s volunteered for Macmillan since 2011, has shared with us a little about her story, and the affect volunteering's had on her life following her cancer diagnosis. A year in the life of… I can’t believe another year has passed so quickly! Volunteering for Macmillan has been in sharp focus this year and yet again, it has been wonderful, scary at times and so very worthwhile. I started volunteering for Macmillan in 2011, as soon as I was able to return to some sort of ‘normal’ after surgery and chemotherapy for ovarian cancer. My inspiration to do this was my Macmillan nurse who introduced me to sitting in front of the camera for a film to promote Macmillan's Coffee Morning and I haven’t looked back since. You can…

Former Member
Mouth Cancer Action Month

November was a rather busy month for awareness days, weeks and months, and whilst it’s a couple of days late, the following blog recognizes Mouth Cancer Action Month. Here’s one of our Ask An Expert dentists, Judith and Lynsey, to share with you some information and tips on coping with mouth cancer. Mouth problems are a common side effect of head and neck cancer and its treatment. Getting support from a dental professional early in the process can really help to minimise discomfort and improve your quality of life. Before treatment – get a specialist assessment: If you’ve been diagnosed with head and neck cancer, you will likely be referred to a specialist clinic for a full dental assessment before treatment starts. This clinic will likely continue seeing you during and after treatment…

Former Member
World Hello Day

Today, November 21 st , is World Hello Day – a day to promote peace, bridge barriers and make a difference to someone’s day through a simple ‘hello’. To recognise the World Hello Day, I thought it’d be a great idea to put a Macmillan spin on the day by sharing a couple of soundbites and pieces of feedback for the Community that illustrate how a simple greeting and the friendliness of one user to another – someone they’ve never met before, can have a huge impact on someones life and really help them with whatever difficulties they might be facing. So sit back, take a pew and enjoy – and if you’ve had any similar experiences on the Community, go ahead and share them in the comments below. “I am so proud of how far we have all come. It was difficult to see the light at the beginning but we…

Former Member
World Vegan Month - Alice's Vegan Pumpkin Spiced smoothie recipe

November is World Vegan Month - a time to celebrate how far veganism's come in recent years, and a time to share vegan tips and recipes with those interested in the movements potential benefits. Our Online Community's resident dietitian, Alice, has taken the time to write about why veganism's grown so rapidly in popularity, its benefits, and she's also shared a rather tasty 'Vegan Pumpkin Spice' smoothie (trust me, I made it myself over the weekend). Enjoy! Veganism is a diet that excludes all animal products including meat, dairy and eggs. It has become an increasingly popular and mainstream lifestyle over the past 10 years. Its growing popularity seems to be due to two main factors: Desire to protect the environment and reduce harmful farming practices. Desire to live a healthier…

Former Member
Top tips for self care

This week’s Self Care Week, a week that focuses on embedding support for self-care across all walks of life. To recognise the week, our fantastic Social Media team have tweeting their top tips on looking after yourself. We’d love to hear yours too, so go ahead and share them in the comments below. If you're finding things tough, it can help to take things one day at a time and not look too far ahead. You may find that things get easier to cope with as time passes. Doing even the smallest tasks may help you feel better. If you can, get up and dressed every day Try to eat well every day. If you have eating problems or a poor appetite, talk to your doctor or nurse. Try to exercise regularly. Keep to a regular sleeping pattern if you can. Stay in contact with your family and friends…

Former Member
Silver Linings - Nicky's story

A couple of weeks ago I received a lovely letter from a lady called Nicky, who'd included in this letter a short story called 'Silver Linings'. I found the story such a positive and optimistic read that I had to share it with the Online Community. Nicky shares with us her story from an initial diagnosis, to present day where she's 3 years on from surgery. What struck me was how Nicky was able stay so positive both during and after treatment, and keep living and enjoying life. I hope you all like the story as much as I did. "It may be rubbish or it might help one other lady see beyond her treatment. To see the 'Silver Linings' during and afterwards. To keep her going." (Nicky) "No" she shouted in her head, as Chris, the Macmillan nurse went through everything the surgeon had told her. Like…

Former Member
Movember - "I think it was being able to tell her how I was feeling ... that gave me great comfort."

It’s November, which also means it’s Movember – that time of the year when gents all over the world commit to growing luxurious and stylish upper lip ‘jackets’ (or ‘moustaches’) to raise awareness and funds for various men’s health issues. We’re lucky enough this month to have Rob, one of our wonderful Online Community members, share his experience with prostate cancer, and how he’s approached and dealt with the emotional impact of the diagnosis. Unfortunately, there’s often a stigma when it comes to gents opening up about their emotions and mental wellbeing – Rob’s story’s a great example of how opening up helped him cope, and also brought him and his wife, Sue, closer together. I do believe, now having been through chemotherapy for advanced prostate cancer, that the emotional side of…

Former Member
Lung Cancer Awareness Month - Cheryl's story

"Shine on, you crazy diamond!" November's Lung Cancer Awareness Month, and to recognise this Cheryl, one of our Online Community members, is sharing her experience with the cancer, which her dad, Derek, sadly passed away with earlier this year. On February 26 th , 2018 my lovely dad, Derek, was diagnosed with stage four lung cancer – non-small cell lung cancer with metastasis to his ribs, lungs, lymph nodes, spine, pelvis and hip … it had completely taken hold of him. My dad’s battle didn’t last long, he passed away in the local hospice on June 17 th – Father’s Day of all days, just three and a half months from his diagnosis to him losing his fight. His diagnosis came as a massive shock. I knew my dad wasn’t a well man as he had Chronic Obstructive Pulmonary Disease (COPD) and had smoked…

Former Member
CBD oil - amendment to Macmillan's Online Community Guidelines

Over the past couple of months, CBD (or cannabidiol) oil has risen in popularity with increased availability of the product. As a result, it’s often been a popular discussion topic on the Community. Due to our Community Guidelines though, discussions on cannabis and its derivatives have always been banned. However, with CBD oil becoming readily available on UK high streets earlier this year, coupled with increased research and awareness into the product and its benefits, the Online Community Team has decided to allow these conversations to take place. It should though be noted that if discussions on CBD oil develop into discussions on cannabis itself, we’ll continue to remove this content – this is because cannabis itself is still an illegal product in the UK. Here are the updated guidelines…

Former Member

Awake and up all night?

We know that cancer can sometimes cause sleepless nights. Join our Cancer Chat forum for some company here in the 'Awake and up all night' thread.

Additional content from Macmillan

Access cancer information and more stories from around Macmillan.

Cancer stories and resources

Get further support from our Men and Cancer campaign:

Find the words to talk about cancer