Community News - Macmillan Online Community

'I honestly don't think I would be here now if I wasn't told about this site' What the Community means to me...Vol 2: Johnty and Popgate

Today we have the second instalment of our ‘What the Community means to me…’ series. This series highlights just how much support, friendship and kindness is shared on the site every day. Today we have two members, and Popgate sharing their stories and discussing what it means to them to be on the site. Why not take a moment to read through? Missed our first instalment? You can click here to read tvman 's story. Johnty's story: 'I was diagnosed 17 months ago with a rare incurable blood cancer and for the first year I coped all by myself, but as my disease has progressed and is now terminal, I wanted to create a support network for myself. The Macmillan forum has come to play a big part in my emotional well being. "It has meant so much to me to feel useful again..." I have taken all…

Former Member
"It's beginning to look a lot like Christmas" - Community Christmas prize draw

As the nights draw in and each day ends, we get closer and closer to Christmas. It’s a time where we often look back and reflect on the year that’s been and think of the things we’re grateful for and we're grateful for you - the thousands of members who make this site the true community that it is. To mark that, we’d like to be able to give a little something back. Throughout the Christmas period we’ll be hosting three prize draws which are all free to enter. We’ll be asking you for a few of your favourite Christmas jokes, traditions and more. This week, we’re giving away a beauty hamper, kindly donated by Boots, who have been partners with Macmillan for 10 years and raised a massive £16.6 million for us. Boots also have specially trained Macmillan Beauty Advisors who offer face-to-face…

Ellen - Macmillan
News from the Community Team - Our new Notification Button

Hi everyone, We thought we would use today's Community News Blog to communicate an exciting new development on the Community. You may have already noticed this on your profile, but you should now be able to see a button labelled ‘Notifications’ when you log into the Community. This is our new notification button. This means that anytime anyone interacts with you on the Community a number will appear next to this icon and when you click on it the interaction will be shown. This is also known as ‘live alerts’. "...it’s easier for everyone to have all their notifications in one place..." We have been working on this so that it’s easier for everyone to have all their notifications in one place and you can see clearly who has responded to your posts and interacted with you on the site. …

Former Member
'My consultant's favourite quote was, "It's not a walk in the park, but it's doable" Mouth Cancer Awareness Month- Chris's story

As the end of November draws in so does the end of Mouth Cancer Awareness Month which takes place every November in the UK. To mark this, we have asked our Community Champion chris2012 a few questions about his experience of being diagnosed with mouth cancer. Why not take a look through Chris’s story? When were you first diagnosed with mouth cancer? When were you first diagnosed with mouth cancer? My name is Chris I am aged 58 and live with my wife and son plus our two mini Dachshunds. I was first diagnosed with floor of the mouth cancer in October 2008 and had my first operation on 5th of November that year followed by 30 zaps of radiotherapy and 3 chemotherapy. This cancer started off with what I thought was an ulcer on my bottom gum but was proved to be a cancerous tumour. "My consultant…

Former Member
'It is a much-loved family recipe'- Dining with an Ostomate: Spaghetti bolognese and carbonara

Debbie, our wonderful 'chef to ostomates' is back today with not one, but two delicious spaghetti recipes. All of Debbie’s recipes are, of course, designed with Ostomates in mind and in case you’ve missed any of her recipes to date, you can find them all in our Ileostomy, colostomy and stoma support group here . So why not put an apron on and get cooking! Enjoy… Here are two recipes with pasta, a failsafe for me when I need to thicken my stoma output. I love to have mushrooms in my Bolognese but with that and celery, I was a bit wary of it at first - until I decided to try blitzing the veg et voila! Dry frying the meat means it’s a healthier recipe than most Bolognese, which add oil. The Carbonara is a great comfort food that I often ate after chemotherapy. It is a much-loved family recipe…

Former Member
"It's heartwarming for me when I see in print that someone has wished me well...it's better than any pill I could take." - 'What the Community means to me...' Vol 1: tvman

Here on the Community News Blog we want to showcase just how much support, friendship and kindness is shared on this site every single day. To try and shine a light on this we are starting a new series called ‘ what the Community means to me…’ which looks at some of our member’s stories, how they came to find the Community and what it means to them to be on the site. In our first volume today tvman shares his story, why not take a moment to read through? Tvman about to plant bulbs with his grandson and wife watching. Tvman’s story I was diagnosed with Myelodysplasia (MDS) in March 2015. This diagnosis followed a period of time that my haemaglobin level was up, it was down but the general trend was downward. So in February 2015 I underwent a bone marrow examination. Getting the sample taken…

Former Member
"So why are pets great? Because without them, I don't know if I'd still be here, and if I were I'd not be as upbeat as I am!" - why pets help us and our wellbeing

This week, we’ve been asking the Community about the benefits of pets. We’ve really enjoyed putting this piece together and it’s clear to see our pets mean so much to us. They can be our most loyal companions, our shoulder to lean on and an ever-lasting source of comfort and love. It’s been so lovely to see all of the responses we received and I’ve no doubt you’ll all love them too. "...the crazy cockapoo welcome I get on my return from work is the perfect antidote from the strains of the most stressful day." 'We had never had a dog before and had always planned to get one when we retired. Retirement plans were sadly brought forward for us upon my husband's diagnosis 4 years ago but we decided to put our retirement plans into action instead of on hold and we found our adorable Milo. Milo…

Ellen - Macmillan
"I have always thought that giving up is not an option, it's more of a stepping stone to what is next" - thoughts from our Community Champion, Mike

Last week on the Community, we spotted this response from Thehighlander , one of our dedicated Community Champions. We couldn’t help but share it, it epitomises the very essence of peer support and that’s what the Community is all about. Enjoy… On the 10th May 1999 I was told that I had a rare type of Skin Lymphoma, so for over 20 years I have lived all the levels of acuity and stress so do understand the 'low' moments a cancer diagnosis brings... what did I do to overcome them? 20 years back I was told that my condition would 'get' me at some point in time, someday, some year but with no calendar... I very quickly come to realise that I could not let my condition define me. A good consultant friend told me very early on in my diagnosis that "all the stress and worry in the world would…

Ellen - Macmillan
"Thank you all so much for sharing your journeys" - thanking all of you, our Community members

We wanted to take some time today to really focus on thanking each and every one of you for the support that you all give on the Community. Below are a few of many examples of the ways that members of the Community provide truly wonderful support to each other every single day in what may be an incredibly difficult time. Why not take a look through? 'You have found this amazing support group and there is always someone here to answer your questions no matter how trivial you may think it is. ...someone somewhere may have been through exactly the same at some point.' - Madesp "...there is always someone here to answer your questions no matter how trivial you may think it is..." 'No matter how much friends and family try to comfort you they will never truly understand how you feel. This…

Ellen - Macmillan
"...One of the best bits of advice given to me, has been to try and take every day as it comes..." (Sukki17) - Wellbeing Wednesdays: November

October seems to have flown by in a flurry of multi-coloured leaves and soggy misty mornings. Here’s our ‘Wellbeing Wednesday’ summary to ease us into the beginning of November. So put your feet up and have a scroll through some wonderful wellbeing tips from the Community . "...if the event is in our control we can do it, and if it’s not in our control we can decide how we respond to it.’ ‘The old adage “Life is what you make it” really is very true, because even in trying times we have the option to decide what to do, and if the event is in our control we can do it, and if it’s not in our control we can decide how we respond to it.’ ( Tim90 ) ‘The Japanese have a word wabi-sabi - nothing is ever permanent, perfect or complete.’ () "Don't have expectations of yourself. It’s rubbish…

Former Member
"For now I feel lucky that I have great support around me to face whatever comes my way." - Laura's story for International Brain Tumour Awareness Week

This week (26 th October – 2 nd November) marks International Brain Tumour Awareness Week. To highlight this in today’s Community News Blog Laura is sharing her story about how she coped when she faced a brain tumour diagnosis in 2016. Laura has also been helping support people by sharing her experience of diagnosis on the Brain Tumour Research website. Brain Tumour Research is a national charity which is dedicated to raising funds for scientific research into brain tumours. You can find more information on the fantastic work of Brain Tumour Research here on their website? Laura’s story: Life always throws you curve balls when you least expect it and, in August 2016, I received the devastating news that I had a brain tumour. Eight months earlier I started to not feel like myself as I…

Former Member
'My husband reassured me that I was more of a woman for finding the bravery and strength to face my fate head on...' - Understanding BRCA by Clarissa

'The emotional journey of coming to a decision to undergo risk-reducing surgery.' By Clarissa. As many of you may be aware October marks Breast cancer awareness month. This is a month of raising awareness and funds for a variety of breast cancer charities that provide lifesaving research and support to people affected by breast cancer. As the month draws to a close, we are pleased to have as a guest blogger in today's Community news, Clarissa, author of ‘ Understanding BRCA .’ Clarissa carries the BRCA2 gene and has written a blog for us today about her experience of making the decision to undergo risk- reducing surgery. Why not take a moment to read through Clarissa’s story? Clarissa, author of 'Understanding BRCA' After learning that I carried a harmful BRCA2 gene mutation…

Former Member

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