Community News - Macmillan Online Community

Top tips for self care

This week’s Self Care Week, a week that focuses on embedding support for self-care across all walks of life. To recognise the week, our fantastic Social Media team have tweeting their top tips on looking after yourself. We’d love to hear yours too, so go ahead and share them in the comments below. If you're finding things tough, it can help to take things one day at a time and not look too far ahead. You may find that things get easier to cope with as time passes. Doing even the smallest tasks may help you feel better. If you can, get up and dressed every day Try to eat well every day. If you have eating problems or a poor appetite, talk to your doctor or nurse. Try to exercise regularly. Keep to a regular sleeping pattern if you can. Stay in contact with your family and friends…

Former Member
Silver Linings - Nicky's story

A couple of weeks ago I received a lovely letter from a lady called Nicky, who'd included in this letter a short story called 'Silver Linings'. I found the story such a positive and optimistic read that I had to share it with the Online Community. Nicky shares with us her story from an initial diagnosis, to present day where she's 3 years on from surgery. What struck me was how Nicky was able stay so positive both during and after treatment, and keep living and enjoying life. I hope you all like the story as much as I did. "It may be rubbish or it might help one other lady see beyond her treatment. To see the 'Silver Linings' during and afterwards. To keep her going." (Nicky) "No" she shouted in her head, as Chris, the Macmillan nurse went through everything the surgeon had told her. Like…

Former Member
Movember - "I think it was being able to tell her how I was feeling ... that gave me great comfort."

It’s November, which also means it’s Movember – that time of the year when gents all over the world commit to growing luxurious and stylish upper lip ‘jackets’ (or ‘moustaches’) to raise awareness and funds for various men’s health issues. We’re lucky enough this month to have Rob, one of our wonderful Online Community members, share his experience with prostate cancer, and how he’s approached and dealt with the emotional impact of the diagnosis. Unfortunately, there’s often a stigma when it comes to gents opening up about their emotions and mental wellbeing – Rob’s story’s a great example of how opening up helped him cope, and also brought him and his wife, Sue, closer together. I do believe, now having been through chemotherapy for advanced prostate cancer, that the emotional side of…

Former Member
CBD oil - amendment to Macmillan's Online Community Guidelines

Over the past couple of months, CBD (or cannabidiol) oil has risen in popularity with increased availability of the product. As a result, it’s often been a popular discussion topic on the Community. Due to our Community Guidelines though, discussions on cannabis and its derivatives have always been banned. However, with CBD oil becoming readily available on UK high streets earlier this year, coupled with increased research and awareness into the product and its benefits, the Online Community Team has decided to allow these conversations to take place. It should though be noted that if discussions on CBD oil develop into discussions on cannabis itself, we’ll continue to remove this content – this is because cannabis itself is still an illegal product in the UK. Here are the updated guidelines…

Former Member
"How my world changed overnight - thanks to you, Paddy."

S aturday, October 20th marked the start of International Brain Tumour Awareness Week , and to recognise this, Paula, one of our brilliant Online Community users, has agreed to share her story and experience. Well, where to begin ... I’m single, 46 years old, and in February 2018 I saw my GP who thankfully, due to his quick thinking and concern SAVED MY LIFE! He rushed me into hospital where within 4 hours I was told I had a brain tumour, suspected to be malignant. I was immediately referred to Kings Hospital in London and rushed in to meet my surgeon who advised the tumour would be removed March 7 th (I couldn’t be beforehand as there was too much swelling in my brain – they did confirm I have one, so I should be grateful for the small mercies I guess! I remained within Medway Oncology…

Former Member
World Mental Health Day 2018

Today's World Mental Health Day (10/10/2018), so I thought I'd take this opportunity to share with the Online Community some tips on dealing with difficult emotions, and generally improving your mental wellbeing. Whether you have cancer, care for someone with cancer or someone close to you has cancer, a diagnosis can bring with it a myriad of emotions: Anger Shock Disbelief Anxiety Guilt and blame Sadness Fear and uncertainty Loss of control, independence and confidence … and many more. There’s no right or wrong way to feel; everyone’s different and may feel differently at different stages of a diagnosis. You might often feel confused about what you’re feeling and why you’re feeling this way - you might have frequent mood swings too. Many people go through varying emotions…

Former Member
"...your reply filled me with strength and a feeling of support. I'll be back!"

In today’s Community News piece, I thought I’d share with you all just a handful of the feedback recently received for our Community cancer forum – feedback myself, Ellen and Jess see day in, day out on the site. The Community’s such an invaluable source of support for people affected by cancer, and the below speaks volumes for you, our Community members, who are the ones sharing your experiences; talking to those who need a listening ear; and offering support and comfort to those who need it most. Enjoy the read, and if you’ve a positive story from the Community you’d like to share, go ahead and do so using the comments section below. “…I'm always so heartened to see the amazing support this little community gives.” “There's lots of support on this group. It is amazing. Sending love…

Former Member
Ovarian Cancer Awareness Month

March is Ovarian Cancer Awareness Month, so to recognise this I’ve been speaking with three members of our Ovarian cancer group, and asked them to share with the Community a little about their experiences, and any tips they might have on coping. If you’ve had any thoughts or an experience with ovarian cancer you’d like to share, go ahead and do so in the comments section below. 'My main difficulty was telling people I loved...I felt guilty...' Posie: “My diagnosis came at the beginning of November 2018, and it was a shock. I attributed many of the symptoms I was suffering to the ageing process and long walks with our new puppy. Once diagnosed things moved very quickly as I was on the two-week plan, no appointment should take longer than two weeks from request to seeing a health care…

Former Member
Congratulations to Kate, our volunteer radiographer...

"I feel really privileged to be in a position to provide support to people." The above quote speaks for itself as to the time and generosity Kate – our radiographer expert, has given to Macmillan’s Community the past three years. Here’s one of our Cancer Information Nurse Specialists, Kim, to tell you a little more as to why congratulations are in order for Kate: Each year the Macmillan Volunteer Awards celebrate our amazing volunteers around the UK. These awards offer the chance to say a huge thank you for the time, care, expertise and commitment our volunteers so generously give. We’re excited to announce that Kate, one of our professional volunteers on Ask an Expert , has won an award this year. Ask an Expert is available through the Macmillan Online Community and provides people the…

Former Member
Dining with an Ostomate - "...a quick and easy way to get food inside me, even when I might not have much appetite."

Earlier this month , Debbie, our resident ‘Ostomate chef’, shared with us a little about her struggles and how she’s coped with eating following an ileostomy earlier this year, and an extremely nutritious ‘Super Green Soup’ recipe. This week she’s back to talk about how she reintroduced fruit into her diet , and shares with us two rather tasty smoothie recipes. Enjoy… Reintroducing fruit: Eating fresh fruit has always been part of my diet, so it was something that I was very keen to reintroduce once I had the ileostomy. I was able to eat bananas from pretty much the third day, and have found them very helpful when needing to thicken my stoma output, and as a mid-morning snack in the early days when I was unable to eat much at meal times. As I knew that I could eat them with no ill effects…

Former Member
"...if you were to see me naked, I look the same as before." - Testicular Cancer Awareness Month

It’s April, and with it Testicular Cancer Awareness Month . To recognise this, I thought I’d share with the Community a few positive stories, anecdotes and ‘words of wisdom’ from our Testicular cancer group. Enjoy, and if you’ve been affected by testicular cancer and wish to share something, go ahead and do so using the comments section below. “Good luck. Try to deal with one day at a time. This is a very curable cancer. The most important thing is that you must accept help from whoever offers it. Taking care of you in all this is essential as you will be taking care of everyone else.” 'Treat it like eating an elephant. Eat it in tiny pieces rather than the whole thing at once." “On a less spiritual note, a good friend said treat it like eating an elephant. Eat it in tiny pieces rather…

Former Member
Get to know the Expert: Hannah (Ask a Physio)

One of my favourite aspects of the Community is the fact our members can put any questions they have about cancer to one of our various experts through the Ask an Expert section of our site. Whatever your situation, wherever your location - you can simply log onto the Community and access support from a professional. Want to know more about Experts who volunteer to answer your questions? Well starting from today we’ll be introducing a monthly ‘Get to know the Expert’ Q&A, where our Experts will tell you a little more about themselves, what they do, and how they can support you through your experience with cancer. This month we’ve Hannah , one of our Ask an Expert Physio’s, to start things off… How long have you been an Expert on the Community, and what made you want to volunteer for…

Former Member

Awake and up all night?

We know that cancer can sometimes cause sleepless nights. Join our Cancer Chat forum for some company here in the 'Awake and up all night' thread.

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