Toxic positivity and cancer: why listening matters

3 minute read time.
Toxic positivity and cancer: why listening matters

Positivity can be helpful when dealing with cancer. Hope, encouragement, and support can make a real difference during difficult times. But when positivity dismisses or overlooks someone's genuine feelings, it can become unhelpful. This is often what people mean when they talk about toxic positivity.

Three years ago, we published our first blog on toxic positivity. The topic sparked a lot of discussion as many members related to the concept.

In this blog, we share members' experiences of toxic positivity and helpful resources for talking about cancer.

What Community members have shared

Positive comments often come from a place of care, but they can sometimes make it harder for people to express how they are really feeling.

“When somebody tells me to stay positive and that I’ll beat this, it makes it all the more difficult to ask for help without feeling ashamed about not coping well. It’s this that makes me withdraw or pretend that all is fine!”
Online Community member, Breast cancer forum

For some members, hearing well-meaning advice too often can make them stop talking about their cancer altogether.

“I have one person in my life who I can talk to. That's enough for me. Otherwise I don't discuss my health with anyone any more. The good advice was too hard to handle.”
Online Community member, Toxic positivity and cancer

Some members have said that finding the Online Community gave them a place where they finally felt understood.

“The main driver for me to join the Macmillan community, if for exactly this very reason. Talk about timely. The overly positive egging along from my friends really does not help me at all”
Online Community member, Toxic positivity part two

Sometimes, people don't need advice or reassurance. They simply want someone to sit with them and acknowledge how difficult things are.

“Hi All, I’ve just come across this post and I feel it…. I’d love someone to just put an arm round me and let me have a good cry on their shoulder, without any platitudes.”
Online Community member - emotional support forum

For many people, the most helpful response isn't trying to find the right words. It's listening, showing empathy, and simply being there.

Share your experience

Have you experienced toxic positivity while living with or supporting someone with cancer?

If so, how did it affect you, and how did you respond? We'd love to hear about your experiences. Feel free to leave a comment below this blog.

Talking about your cancer

It can be difficult to talk to others about a cancer diagnosis or cancer treatment. People may react in different ways, and many have little experience of supporting someone with cancer.

If you're looking for guidance on these conversations, the following resources may help:

Talking to someone who has cancer

If you're supporting someone with cancer, it can be hard to know what to say. Often, listening is more important than finding the perfect words. Here are a few things you might want to keep in mind:

  • Pay attention to what the person is saying. Try to listen instead of thinking about what you are going to say next.
  • Do not feel you have to talk about the cancer. Let your partner, family member, or friend talk when they are ready.
  • It may not be helpful to tell the person about other people's stories. Cancer is different for everyone.
  • Try not to say that everything will be fine or encourage them to be positive. It is often more helpful to let people speak honestly about their feelings.

Follow the link below for more information and practical tips:

Further reading

If you would like to read our other blogs about toxic positivity, please click the links below:

Madiso
  • I’m dealing with this a lot, mainly with a close elderly relative. Today she said “I’ve got a feeling inside everything will be fine!” and then doubled down on that when I challenged her. It’s important to me to be able to face up to possibilities, for practical reasons. Having someone disregard them doesn’t help at all. I’m lucky my husband is a huge support and level headed. But I’m going slightly round the bend with some folks. Often biting my tongue, until I can’t hold it in any more.

  • Do any of you tell people how unhelpful being told to be positive is and explain that it invalidates your feelings and the traumatic experience you’re going/been through?

  • From the long list of annoyances.... "Well if it makes you feel any better, you look great," "Positivity will get you through this" to which I reply.. no drugs and expertise will"

    I spoke face to face to Maggie's and came out so much better for having emptied my mind of most annoyances.

  • I've experienced what I'd call annoying positivity, when people tell me it'll be fine and they know I'll beat it and medical science has come on so much... I usually just smile and move on perhaps, because I might have been one of those people before I had cancer. 

    I've always been open about my prostate cancer and the main ways it affects me, without going into too much detail. I'll carry on doing that in the hope that it might in a small way help other people to have better outcomes. 

    I also wonder if it's sometimes me doing the toxic positivity, making out that I'm doing better than I am. 

  • Good one Pete. My response to 'how are you doing' is usually 'well. I'm still here aren't I?'. 

    I am sympathetic to people though as it is very difficult to know what to say when someone tells you they're not going to get better. 'Well you've had a good innings' doesn't seem appropriate somehow.