Toxic positivity and cancer: why listening matters

3 minute read time.
Toxic positivity and cancer: why listening matters

Positivity can be helpful when dealing with cancer. Hope, encouragement, and support can make a real difference during difficult times. But when positivity dismisses or overlooks someone's genuine feelings, it can become unhelpful. This is often what people mean when they talk about toxic positivity.

Three years ago, we published our first blog on toxic positivity. The topic sparked a lot of discussion as many members related to the concept.

In this blog, we share members' experiences of toxic positivity and helpful resources for talking about cancer.

What Community members have shared

Positive comments often come from a place of care, but they can sometimes make it harder for people to express how they are really feeling.

“When somebody tells me to stay positive and that I’ll beat this, it makes it all the more difficult to ask for help without feeling ashamed about not coping well. It’s this that makes me withdraw or pretend that all is fine!”
Online Community member, Breast cancer forum

For some members, hearing well-meaning advice too often can make them stop talking about their cancer altogether.

“I have one person in my life who I can talk to. That's enough for me. Otherwise I don't discuss my health with anyone any more. The good advice was too hard to handle.”
Online Community member, Toxic positivity and cancer

Some members have said that finding the Online Community gave them a place where they finally felt understood.

“The main driver for me to join the Macmillan community, if for exactly this very reason. Talk about timely. The overly positive egging along from my friends really does not help me at all”
Online Community member, Toxic positivity part two

Sometimes, people don't need advice or reassurance. They simply want someone to sit with them and acknowledge how difficult things are.

“Hi All, I’ve just come across this post and I feel it…. I’d love someone to just put an arm round me and let me have a good cry on their shoulder, without any platitudes.”
Online Community member - emotional support forum

For many people, the most helpful response isn't trying to find the right words. It's listening, showing empathy, and simply being there.

Share your experience

Have you experienced toxic positivity while living with or supporting someone with cancer?

If so, how did it affect you, and how did you respond? We'd love to hear about your experiences. Feel free to leave a comment below this blog.

Talking about your cancer

It can be difficult to talk to others about a cancer diagnosis or cancer treatment. People may react in different ways, and many have little experience of supporting someone with cancer.

If you're looking for guidance on these conversations, the following resources may help:

Talking to someone who has cancer

If you're supporting someone with cancer, it can be hard to know what to say. Often, listening is more important than finding the perfect words. Here are a few things you might want to keep in mind:

  • Pay attention to what the person is saying. Try to listen instead of thinking about what you are going to say next.
  • Do not feel you have to talk about the cancer. Let your partner, family member, or friend talk when they are ready.
  • It may not be helpful to tell the person about other people's stories. Cancer is different for everyone.
  • Try not to say that everything will be fine or encourage them to be positive. It is often more helpful to let people speak honestly about their feelings.

Follow the link below for more information and practical tips:

Further reading

If you would like to read our other blogs about toxic positivity, please click the links below:

Madiso
  • Hi, thanks for the reply. I love your response that shuts them up.

  • Thankyou Dylan, I'm so glad i came onto this site. Means so much to actually have people who understand how you feel.

  • Hello Rodders

    Sorry to read you have been diagnosed with the wicked word!

    I found that the only people that fully understand the feeling of having a diagnosis are people who have also been diagnosed. This of course excludes the wonderful staff up and down the country that treat us all.

    I feel your reactions and emotions are perfectly normal.

    If it helps I found it easier to try and block out the silly comments some people make.

    However, some people seem to struggle and have zero empathy!

    I hope all goes well for you.

    Please keep in touch if you need to chat.

    Mark

  • This is all so true, in my experience people fall into 2 camps.  E.g. my friend had (insert here) ate this, did that and it will either descend into a horror story or the miracle cure. 

    Or it's: Come on, you're a strong person, you've got this. It shuts down the conversation immediately or forces you to defend the fact you are scared, vulnerable. 

    The hardest one to hear when first diagnosed is: You'd never know it to look at you, you look so well.  

    This is so well written and yes, the hospital Macmillan hub has been my lifeline. 

    Thank you HeartBlue heart

  • I was just having this conversation the other day. A person was sharing her mother's difficult death, many years ago. I too had a similar experience with my mother. My mother was.told she didn't have cancer but very quickly afterwards was told she did and it was untreatable. It was a difficult drawn out process as she deteriorated and we were by her bedside 24 hours a day.

    My recent conversation was saying that I wince when folk are told to keep fighting. Sometimes fighting isn't right for the person. Sometimes they need to pause and rest and just ' be'.

    We have to ask ourselves is it us that needs them to fight? If course we don't want to loose them but is the struggle for our benefit rather than theirs?

    'Keep fighting' may be what someone is doing every second of the day, fighting the illness, fighting the treatment side effects, fighting their fears etc etc 

    Please try some other response ...