New to the Online Community - some help in getting started

1 minute read time.
New to the Online Community - some help in getting started

Are you new to the Online Community and looking for help with getting started? We're here to help.

How to get started on the Online Community

We have produced a short video, showing you step by step how to get started.

This video shows you step by step how to join a group/forum and post a message.


Written instructions for getting started

If you prefer written instructions, you can find them here: 

  • If you haven’t already joined the forum click in the joining banner at the bottom, then click ok.

  • To add a new message in the forum, click on the ‘create new post’ button.

  • On a mobile, this looks like a plus sign at the top right of your screen.

  • In some groups, you can choose from different forums. If you’re new, you might want to choose ‘new here say hello’

Subject line - Write your post title in the subject line, this should just be few words to describe what you want to talk about or discuss

Description - Use this space to write your post. This will start a new discussion in the forum.

You could:

  • Introduce yourself
  • Share a few details about your cancer experience

You might want to:

  • Ask a question to other members
  • Share your cancer experience
  • Talk about how you are feeling, vent your emotions or share your fears
  • Or ask for other member's experiences

It's ok if you're not sure what to talk about yet, we'd encourage you to introduce yourself so that other members know that you're here.

Once you have finished writing, click ‘post’ in the green button at the bottom to post it in the forum.

If you have allowed email notifications, we will send you an email to let you know when someone replies to your post.

Let us know what you need help with

We are producing further videos to help users of the Online Community access the support you need. Please do let us know if there is a function you would particularly benefit from some extra help with.  

Ghhv
  • Hello  

    Thank you for commenting on the blog.

    I am sorry that you have been through lung cancer. It's really positive that you're looking to spend some time abroad with family and it's absolutely not a trivial issue at all. I hope we can help you find the support that you're looking for.

    We have a dedicated travel insurance forum here on the Online Community. You can click on the link to go straight to the forum. I have already joined you to the forum so you'll be able to ask a question right away if you'd like to. 

    At the top of the travel insurance forum, you will see a thread called 'member's recommended travel insurance' which you can have a look through.

    If you'd like to ask your own question, the video and instructions above will help you get started. Please do let us know if you'd like any further help.

    You might also want to have a read through our blog about travel insurance where you will find links to further guidance:

    I hope this is helpful, please do let us know if you need any further support.

  • Hello, I'm new here. Two weeks ago, or was it 3? Seems like forever, my husband was diagnosed with squamous non small cell cancer in the top of his right lung. 

    I'm devastated. He's 72 and I'm 68. I'm angry too. We're both stopped smoking 6 years ago and I feel angry about it. How do I know when he needs comfort and when he needs to be alone. 

    Tbh I don't know what I'm asking, I just want to tell the world that my husband has been diagnosed. 

    Sorry.

    Debbie

  • Hi I need help finding the Glioblastoma forums please

  • My husband is now on his 4th cancer. The first was a brain tumour in 2015, throat cancer leading to his voicebox being removed in 2016, colon cancer leading to a colostomy bag in 2018 and in 2025 new tumours found. He had a short run of chemo that was so strong it nearly killed him and he's been terrible since. Started in Nov and we literally missed xmas because of the terrible side effects. In Feb he got ill with a stoma infection in hospital 2 weeks, out for 4 days and back in hospital for 7 weeks with pneumonia. He almost didn't survive. We had no care plan to come out with and struggled. After 5 days he was back in our local hospital with more pneumonia symptoms, and out for 4 days and back in again with a gall bladder infection. He is exhausted and has sleep depravation, post hospital syndrome ( almost constantly asleep, jerky movements and drops things, confusion). I have found the travelling, visiting, being his advocate for doctors and nurses and now 24 hours caring draining. Although other services off practical help like shopping cleaning, someone to manage medication etc, I don't find I need that. What I do need is to be able to go out for a bit to get away, meet a friend for coffee or lunch, have a hair appointment etc and have someone be in the house with him so I am not worrying. Has anybody found a service that can do this for them. I am based in Salford. 

  • Hi new on here

    Right side colon resection october 22. Bowel issues since.discovered right side can give more problems with urgency.we are not given dietary advice but discovered many colon operations make you gluten intolerant.This weekend very bloated tummy could this be bile malabsorption .ringing gp tomorrow