Confused

Less than one minute read time.

I am not sure if anyone can help but I am really confused as to what stage Dad is at and why he's not being treated.

He has to go to see his consultant every 3 months but doesn't have any tests, just a chat.  They tell him he has a cluster in his right lung in August and he has to been seen every 3 months but then they don't actually do anything.  Mum has now gone into denial and she finds it really hard to go to these appointments when they aren't actually checking whether anything has changed.

Is this the usual practise? It seems a bit odd to me and makes things really difficult to deal with.

Any help/advice would be gratefully received.

Anonymous
  • FormerMember
    FormerMember

    Has your dad had any treatment up to now.   My mum was diagnosed with lung cancer in 2008..   Has gone thru lots of tests.  Radiation theraphy and 2 courses of chemo...  None have done the trick,  she has now had all treatment stopped as she is too ill.  Now pallitive care.    Do you ever go with your parents to the consultations to ask questions..

  • FormerMember
    FormerMember

    Hey, my mum had a brain tumour, she had radiotherapy and chemo for about 6 monthz, and then after that we saw the consultant every 2/3 months .. it was just a check up to see how things are going .. she would have her usual scans etc .. but as they say .. a scan isnt a patient .. and with my mum although her scans were great you would know to look at her that she wasnt!.. they just keep and eye on things, and it gives you a chance to ask any questions! you are obviously worried about this .. so ask your dads consultant at the next appointment .. or if you feel you cant wait that long .. speak to the specialist nurse who should be able to giv you the info you need! also .. in my case because i was my mums next of kin .. i could make an appointment to speak to her consultant without her there! which in the end i had to do to get some answers! good luck and best wishs

    xxxx

  • FormerMember
    FormerMember

    Hi, Dad has had no treatment since we found out the cancer had spread to his Lungs.  He was told he wouldn't get any until he started to be ill.  I am unable to go to any appointments with them as Mum & Dad wouldn't let me.  I am sometimes unsure as to whether they tell us everything or keep some bits back to try and protect us.  I am due to move to Australia in Septmeber and am finding my head is all over the place.  Dad is desperate for us to go - he wants to spend December with us to watch the Ashes! In a way it doesn't feel real.  He doesn't look ill and we only know it's there because of the scan.  Thanks for your messages, it's really nice to know there are other people out there to talk to xx