Now it's in the bones..........

2 minute read time.

I have just been through a CT Scan due to a recurrance just above the Tram Flap area from my first Breast Mastectomy and Reconstruction in 2010. This Scan showed two hotspots 1 in my womb and the other in my bones, So had an MRI and the news was that the Breast Cancer is now in my bones. Seeing another Consultant next week for a hopeful treatment plan that will also treat the recurrance in my breast as it is on the skin in that area. So now I am on a completely new journey after having 2 Mastectomies with Reconstruction from the buttock area and the removal of my Ovaries and Fallopian tubes as a precautionary back in Feb this year. Started to feel ill and though it was just me recovering so here I am. They said both areas can be treated and I hope they can be. But what is worrying me is that at the local hospice where I go, the manageress mentioned to me that perhaps I should think about Pallative care  as she has been following my case for the past two years. I was utterly shocked by this and told her there was no way I was going down that route of which she replied well maybe in the future. Second to that my doctor was reviewing my pain killers and mention that the next level may need to be Morphine as I am on the strongest pain killer at moment (Tramadol) and again I said No Way do I want that. I cannot get those two negative things out of my mind as they have put them there. Yes I am worried, but then my own Consultant regarding the Breast Cancer has told me that I can be treated and has said to me I will live and do not have weeks or months left, but knows a lot of women who have lived 10 years plus after bone mets. (So the dilemma is the contraction of professionals and  some that seem to think I am ready for the scrap heap!!!) My next worry is what the treatment is going to be and I have listed my questions for next week when I go to the bone specialist. Don't know anymore than that, as to what, where size it is and I thought they would of had to do a biopsy to clarify rather than just know from an MRI Scan. I do have oestioporosis and had this before I was dx with Breast Cancer. I also have the BRAC2. I am pretty well educated regarding the Genetics, Breast Cancer and know nothing about this new journey that faces me. So any help would be grateful. I have no intention of dying. (Also on Femara Letrazole, re the eostrogen and  Vit D and Calcium, Actonel for the bones.)

Anonymous
  • FormerMember
    FormerMember

    Just wanted to send you a big hug...

    No experience of bone mets etc but I did take morphine for a while and it was ok. I resisted for too long thinking no way!!  until the nurse persuaded me that there were no prizes for martyrs and that your body converts codeine etc into it anyway and you struggle to heal when in pain. I took it while I needed it and stopped when the pain eased off after treatment. So look at it as a tool to help you along the way, not as a downward step.

    I have had docs telling me things won't work.. I just had an operation that 2 said probably wouldn't work and one said might and was willing to try. It worked really well! So listen to the one you trust and stay positive, it makes all the difference. Listen to your consultant, he knows you and your case. The rest are just speculating. He would not tell you lies about 10 years etc would he? Some people are a bit doom laden and not to be listened to. As for the morphine, its ok. Plenty of us taken that - I managed coffee out with friends and even looked round and bought a house whilst on morphine (wouldn't recommend driving too far!!) but you can carry on, apart from being a bit sleepy sometimes.

    Wishing you all the best on your new journey...

    Little My x

  • FormerMember
    FormerMember

    Hi

    Well, that manager needs a slap, just for a start. You start thinking about palliative care when everything else has been exhausted, and not before, and, in your case, there is still plenty that can and will be done.

    Your cancer is way different from mine, so I haven't any advice - just keep fighting! Oh, and take the drugs. 

    Good luck!

    - Hilary

  • FormerMember
    FormerMember

    Hi Donna,

    So very sorry to hear of this latest bad news. You've been through so much already but, as Nic has said, you are a fighter and I know you'll carry on fighting and being as positive as you can be!

    There is at least one other drug between Tramadol and Morphine Donna and may be worth asking about. Oxynorm (normal release) and Oxycodone/ Oxycontin (slow release) come in a variety of strengths and are also opiate based, as is Tramadol. I have been on Tramadol in the past and am now on Oxycodone 20mg twice daily and Oxynorm 10mg for any breakthrough pain and I find it better, for me, and more effective.

    We all react differently to drugs, but if you are in pain, then I agree with Little My, Hilary & Nic, take the morphine if you need to. There's no need to be in pain and as Little My has said, it takes longer to heal when one is in a lot of pain.

    Take care Donna and keep in touch. Will be thinking of you.

    Love, Rose x x x x x ((((((((((((((((((((((((((((((( hugs )))))))))))))))))))))))))))) x x x x x

  • FormerMember
    FormerMember

    Hi Donna

    I would go with the consultant's advice - he is the one treating you and seems very positive.  I feel there is no point in being in pain if it can be alleviated  and we all need quality of life (not only for ourselves but those around us)  - would rather be sleepy and cuddily than in pain which isn't nice for you or those around you.

    Sending you lots of love and positive thoughts

    Jan xx

    .

  • FormerMember
    FormerMember

    Hi there,

    I think people have a misconception about palliative care - this does not equal end of life care! The WHO defines it as follows: 'Palliative care is an approach that improves the quality of life of patients and their families facing the problem associated with life-threatening illness, through the prevention and relief of suffering by means of early identification and impeccable assessment and treatment of pain and other problems, physical, psychosocial and spiritual.'

    Having said that, of course you feel how you feel and it is easy for me to give you a definition, but that won't change your perception.

    Your consultant will know best what treatment to give you, and if he/she is positive, go with that. Regarding pain medication - it depends on the side effects. Personally, I'd rather have some pain than be totally out of it. Has your doctor discussed patches with you?

    Good luck with everything! xxx