Recently it was discovered that my husbands kidney cancer is also in his brain. This has had an affect on how he is dealing with his condition. He is extremely emotional crying a lot but also the disease is affecting his moods and can change from one minute to the next. This is very difficult and find myself getting impatient having to repeat myself over and over as his short term memory is also affected. I feel very guilty even although I am finding patience that I never thought I had. Does anyone out there have experience of this? Or any suggestions on dealing with it? I have great support from family and friends but this is all difficult and would appreciate any help.
Caroline
FormerMember
Hi Caroline
I have no experience of this kind of cancer, mine is breast, so I'm afraid I cannot offer any help but wanted to say there is always lots of support on this site and I'm sure someone will be able to provide some kind of help.
I am a patient and do not know what your dealing with but can only try to. Feeling guilty for feeling impatient etc... is all normal and try not to feel so bad. You are human and its only natural. Besides you are also dealing with this as a wife and it is not easy. Talking to others who are in your shoes sure is the best thing and your reaching out. So that is a great step. My husband had to deal with me and he was most patient. I'm afraid to admit... more patient than I would probably be with him. your scared and have tons of stuff going through your head.... try not to be so hard on yourself and keep reaching out.. you will catch someone in your shoes soon enough...
I cared for my husband who had a brain tumour so I experienced some of what you are going through now. It is very challenging for you as you need to hold everything for your husband and remember things for him. At the same time you have to deal with his mood swing.
So make sure you look after yourself. I used to talk to Macmillan nurse about my problem. Also my husband's speech therapy thought I was struggling and recommended me to approach a cancer therapist (couldn't get an appointment in time though).
This site is full of people who know exactly what you are going through so keep coming back and get things off your chest.
