Today started bad with my husband having been up during the night when he seemed much worse. I phoned his cancer nurse to explain. I was really concerned. However a short time later (once steroid kicked in!!!) he was great. We got out for a walk and he was in good spirit and thought his sight was clearer. We had a few visitors a good friend of his and close relatives. My daughter and son in-law my son and his girlfriend were coming for tea. Tea-time saw a change in his mood. Because I had lots of company it lightened the load!!!! It was like he was treating me like a servant ordering me about. If he realised I know he wouldnt be doing it as it is out of character. Sounds weird but I was pleased that it was seen by my family. They have seen it before but in small amounts. Somehow it felt ok because they were there. Does that sound silly??? I know that everyone believes me but sometimes I find myself saying "honestly I think you must think I am making it up"!!!!
Lets see what tomorrow brings. I ended up phoning the cancer nurse again to say he was great later as I felt as if I had done him an injustice telling her he was not good earlier. Life is such a roller coaster ride. It used to be a few weeks at time , then a week at a time, then a day at a time. Now it can be up and down a few times in the day.
Fingers crossed the night is good and the morning brings another good day.
Sorry you are having such a rough time at the moment. I have not had experience of steroids in cancer treatment but my daughter had them for Crohn's and it certainly changed her personality whilst she was taking them. At one point her partner 'phoned me claiming she was totally out of control. You are obviously the closest person and therefore getting the sharp end of the stick. I'm glad you have the support of both family and your cancer nurse - you certainly can't be expected to deal with all this alone.
