why is it
i am asking why is it , i feel let down by the local bennifit office all they seem to want is to take away that little bit of help you require , its not like we asked to have CANCER .... dont steal the goverment dont like compertition.. well thats my moan out of the way
.....can anyone tell me how i am suppose to feel. i have had my kidney removed and some more things, justed had my second dose of chemo ,, it feels like i am on fire or should i say jon thomas is lol...how many more blood samples do they require i have more pricks than a second hand dartboard ...
roll on the day they say i can go back to work
good lick to you all from stuart
FormerMember
It's awful when you are looking for help and can't get it. Have you tried your nearest Maggies Centre. They were a great help for my husband. They will have someone who knows what you can claim and will help fill in the forms too.
My hubby has been off work since Feb 2000, he gets paid a third of his salary from an insurance scheme his employer paid for, he is still technically employed and is made to pay tax and NI contributions even though he has had two types of cancer, one of which several times, in fact most of him is in jars at the hospital, we are not allowed working tax credits as he is not employed for this purpose, even though it is the same government department that says he is employed to pay dues. He is not classed as unemployed either so no help there. He is classed as employed by social services so no help there, he is employed when it comes to getting help for health costs, so no help there. My son has been a young carer for both of us since he was three yrs old as I am disabled with a genetic spine condition and when he turned 16 I asked could he have carers allowance and was told no as he has gone to college full time to do A levels but was told that he could work as much as he wanted without it affecting tax credits, which is a joke because hubby cannot have them. We have paid for our own mortgage since he came off work, we pay for health costs, we pay for school meals and bus fares and the list goes on and on.
I have been to our MP, she has been looking into it for over two yrs, I have been to appeal to no avail, I have been to the Adjudicator to no avail, I am waiting on the Ombudsman to come to a decision now and I have even been to the treasury minister and the PM. The treasury minister felt sorry for us but we are a one off according to him and the PM was too busy to look in to our case.
It has got to the stage where I wish hubby's employer would finish him because at least then we would not have to pay NI which would mean we would have that money at least.The real joke about the NI is that hubby probably will not reach pension age so will not even get his old age pension.
This is happening to cancer victims all over this country and no one seems to get it. It is so hard to deal with cancer on its own without having to worry about money all of the time.
Scream from the roof tops if you get no where as I know that if need be I will take legal action against what has happened to us. It is a fight I do not need but I will not let it go as we did not ask for this life and we both left school and went to work, paid our dues and we are law abiding. This government needs to address what is happening to all of us.
I even had a meeting at the hospital a few weeks ago to ask why do patients have to pay to park at a cancer hospital, and why do patients have to now pay for 'specialist coffee' at a price like on the high street, they do not go there for a day out they go there because they have to. The manager had never looked at these things like this before and some of the things I raised are now changing. She tried to tell me about patients not eating and the hospital had a duty for their welfare, I explained that even though most of the patients were being sick and did not feel like eating, some of them were worried about where the money comes from for the special diets they are supposed to have at home. Not one of them seems to understand how it feels to lose your income and possibly your job, then have to find the added cost of travelling to and from specialist units for treatment, extra food, heating bills, raised water bills due to soiled clothing, having to buy new clothes because someone has lost so much weight etc etc It is up to all of us to lobby our MPs to make these changes happen, if not for us, then for those that come after us. This could happen to anyone, even the civil servants who deny so many a little help!
I had the hearing of my appeal re the JSA decision not to pay me anything while signing on in Feb and the Judge ruled in my favour after I explained my circumstances at the time of signing on. He went through all the papers submitted by Job Centre and after asking me a few pertinent questions and explaining the Law etc he finally said that he was glad that I had attended in person because he had already formed an opinion reading the papers but after hearing my side of the events he had totally changed his mind and decided in my favour! He's backdating it 26 weeks! Apparently I should be hearing from JSA Dept within the next 4 weeks.
So, if you feel you have not been given the right info/decision then it's worth going for an appeal and going in person. The worst that can happen is that you are still turned down but there's a chance you may get the decision reversed. Thought I would post this to give you all some sort of hope!
