My friend took me to the hospital today as mum is having the weekend off and at home in Yorkshire.
I still have double vision and I am still taking regular meds (solpadeine and ibuprofen) plus I continue to carry out good oral hygiene - using Oral Nurse unflavoured toothpaste and pink tablet mouthwash. I have stopped using the irrigator (like a mini jet washer auto floss) as my gums were beginning to bleed due to the water pressure. I then apply Gelclair around the inside of my mouth, reaching as fat back as I can to try and coat the back and roof of my mouth. I cannot say whether it not it works, because I have always used it since I was given it - even before the ulcers started appearing. I also use Oralieve to try and assist the dry mouth that persists on the one side where my salivary gland is being slowly zapped away.
I tried taking one of the new strength co-codamol before going to bed and this seemed to get me through the night relatively pain-free.
Last night, following my treatment I looked a little further into my double vision diagnosis so I could understand more. It seems to be related to cranial nerve IV (operates the superior oblique muscles) - which is an unusual nerve and which is the only one to run down fron the rear of the brain stem (possobly close to my hair loss patch?). I also found a little evidence of radiotherapy affecting the muscle which is involved in my double vision ..... So I am still not 100% sure that it is related to my MS. I don't know how this can be answered without a further MRI scan ..... But I am expecting that I will have to complete treatment first. I don't really know how best to proceed and, although my consultant is going to converse with my Neurologist, I may also contact my Neurologist. I was certainly never advised of any risks to my vision arising from my course of Radiotherapy. It is tough excuse I do feel little queasy all the time as a result of it (even with one eye obscured).
Other than this I have no new symptoms and yesterday I had a 45 minute nap late afternoon. My energy levels are lower but the fatigue isn't on the increase yet. I think re energy levels being low are also associated with my vision issue. The sun is shining and I do really want to get out later today, but need the arm of my husband to help steady me in our nearby woodland.
We are out to a friends for dinner tonight and celebrating reaching half way .... With a glass of chilled water (maybe fizzy will be really pushing out the boat!). Let's see what the rest of the weekend brings.
Xx
Just wanted to let you know my husband got double vision a nd it was the cranial optic nerve ,he did have radiotherapy treatment twice for nasophyngeal cancer as it recurred after five years , my advice would be to get your neuroligist involved sooner rather than later ,just to make sure everything is ok as I am sure it will be .
Good luck withe rest of the treatment , constipation can be really tough hope you get it sorted .
Julia-l thankyou for reapplying to my blog post. I am so sorry to read about your husband.
I will find out what the neurologist thinks later this week.
Sending you hugs
BronB xx
