BouncingCzech's blog

Well after my meeting with the Prof on wednesday there's certainly plenty of good news to report. Although he had very little time for me, the upshot of the meeting really was that all my bone marrow results are fine, my central line's getting taken out next tuesday since I haven't had any transfusions or anything for ages and all the results are looking great. Also, no more drinking boiled sterile water, which is weight…

Since my last blog I started doing very well, I saw my friends, had some really good days, was managing to sleep alright and really hadn'y been feeling anxious at all, just taking things in my stride and knowing that things were all going to get better once the steroids were gone. Plus I had all my plans to start getting my programming work back on track, start my disserttation research, etc. etc. and seeing my mates…

Well yesterday was a horrible day, woke up a 1am with my legs in agony, took some painkillers and walked around for a bit and it subsided so I went back to bed. Then I woke up again at about 4am and with exactly the same thing, this time unable to take any painkillers because I'd already taken codeine and paracetamol. I was feeling angry, pissed off and just gutted that yet again I didn't get any sleep. All day I just…

Tough to know where to start, it's been a hell of a week. It's been a week of sleep deprivation, tears, anxiety and mood swings but the steroids are coming down and down now, I'm getting close to being off them though but they do build up in your system so it'l take a while for them to flush out even when I'm off them entirely. Physically everythings going really well, I'm eating well, exercising (a little too much…

The last few days the steroids have just been wrecking me, I've been trying to survive off a couple of hours sleep a night and it's just been turning my brain to jelly, which has been making me worry about absolutely everything. Eventually today it came to a head, I just started screaming and shouting, I couldn't calm myself down so we went straight to hospital and the Doctor's put me on some dopamine to keep things in…