New to it all

Less than one minute read time.

as i have always said if i can get it i will get it, i have only justr been diagnosed with this disease (can i call it that) or condition?

I suffer from Epilepsy and diabetes which both conditions i can control, but this i cannot, i dont know what emotions i will be going throo, but have decided from day one of being diagnosed to write all my thoughts down in a journal, might seem funny or weird to others but to me it seems the most sane thing to do, i have always coped with death and illnesses well in the past but this has got me flumoxed stumped and bewildered.

I lost my father to a mining disease only a year ago and when ever i was ill or hurt myself he was there to comfort me and tell me that "everything will be all reet lad"

Now hes not here i feel lost and alone, i have my partner Tracy, her boys Simon, Jason & Oliver who all comfort me when im down, but i really miss my dad

Anonymous
  • FormerMember
    FormerMember

    Hi Biggles welcome to the site nobody wants to join but now you have you will get all the support you need from very nice people some of whom will know all about your form of cancer.

    My advise is to take it one step at a time. You have just been diagnosed give yourself time to come to terms with it. I know you will feel that you won't but I promise you that you will.

    Once you know what plan of treatment you are to have you will feel as though something is being done to make you better.

    Ask your Drs as many questions as you need to. Write them down and take the list with you at your next appointment.

    People DO survive and live with cancer. It isn't always a death sentence.

    There are many on here who have survived I am one and many others have been given a terminal diagnosis but are still living full lives many years later.

    Fear of the unknown is the worst part of this decease.

    "Everything will be alreet lad you'll see"

    Small steps at a time.

    My best wishes to you Love Julie X

  • FormerMember
    FormerMember

    Nothing more for me to say Mate - Julie summed it perfectly - Welcome to the Mac Family !

    Stay Strong

    John

  • FormerMember
    FormerMember

    Hi Biggles,

    If I can help in anyway just let me know. have alook at my profile and that will give you an idea what I mean. Welcome to Macland.

    Take care and be safe. Good Luck. Sarsfield.

  • FormerMember
    FormerMember

    Good luck with your journey - for that is what it is - an adventure that none of us want to go on but hey ho let's make the best of what we have got. A friend of mine thought I should write a journal for my family to read and I finished up posting it on here - The Demise of Roland Ratso, Roland's Revenge and Roland Ratso - the aftermath. Maybe you could post your journal on here? If there is anything I can do please let me know - my profile is under drewcotgrave and you can private message me there. Everyone is different - we all have a tale to tell. I am an ex coal miner and know what mining diseases do. Get a rapport with your oncologist/surgeon/cancer team - my oncologist is a grumpy old sod but he tells you like it is without any frills "Mr. Wilkie I am going to try and save your arse!" He then went on to say how. Straight to the point. My kind of man. The surgeon was pretty special as well - another straight to the point but not as abrupt - "You have a less than 10% chance of getting through surgery." I walked into hospital on October 9th last year and was stretchered home five weeks later taking three months to walk again. But I did it and lots do. I have a saying "It all comes right in the end" although the end might not be what you envisioned when you started. Involve them who want to be involved and if people don't want to be involved then just let them get on with it. You will find there are lots of "waits" - wait for an appointment, wait for a test, wait for a scan, wait for a biopsy, wait for the results, wait for a treatment plan and the waiting can become unbearable - especially for your family but if the waits are too long then shout up. I didn't have to but some have - if you don't understand then ask - and ask again if you are not sure. Last of all take the good times with both hands, laugh - laughter is the best medicine after all, and look back on the bad times and say "well done - I have achieved so and so in spite of all the crap being thrown at me." We are all different and each reaction to cancer is different. Treatment is not an exact science. We can't take the cure off a shelf. Take each day as it comes.

    and last of all,

    Through it all

    Keep smiling

    Drew

  • Please keep posting and let us know of any progress. This cancer lark is one long waiting room... but don't be afraid to ask questions.

    KateG