Nearly said sod it

1 minute read time.

Sorry i ant been on here as much as i would have liked but the pain from the Radio Therapy is really really excruiating all i seem to want to do is sleep, and as i am off solid foods at the moment and only drinking my energy levels are dwindling i drink food suppliment shakes when i can keep em down.

My Oncologist doesnt seem to inspire me to carry on, but early last week i was really really down and ready for kicking it in the head, being in constant pain and feeling sick, with a very high metallic taste i was at my witts end, everytime i lay down i felt sick. its not the eating that is bugging me, its the taste of the food i can eat being the same.

They have given me some anti sickness pills that melt on your tongue, i will carry o with it am sure but it seems to me that the research needs to find something that can take the meatallic taste away, if they can do that then it would make the treatment more bearable.

Being without strength and very very fatigued isnt the problem its the goddam taste and lack of taste too.

I have tried every type of drink fizzy and still types the one with a little taste is the Liptonice Peach tea, that seems to be the only one that gives me a respite from the metallic taste, also the best mouthwash i have found is Bicarbonate of Soda in warm water swilled and gargled 3 or 4 times a day its softer than the ones they give you at the hospital, different things seems to work better for different people.

When i write my journal i am going to include things that helped me they may not help others but they can always try em out

Biggles13

ps 20 down 14 to go (2nd phase starts Monday roll on 24th Feb)

Anonymous
  • FormerMember
    FormerMember

    Biggles, mate, we all get there now and again - the dark days or black dog as Churchill used to call it. I managed to change my mindset - I just gave up bed sometimes just catnapping in the armchair - I found it less frustrating than going to bed and trying to get some peace. I got radiation burns up my arsehole which made crapping unbelievably painful and I nearly said sod it after chemo six. The effects are cumulative so each cycle hits you harder than the previous one. You are doing the right thing trying different things to try and help you.

    Soory i can't be more helpful but keep at it - it does get better!

    Keep smiling

    Aye

    Drew

  • FormerMember
    FormerMember

    aw bless hun you are having a time of it but hang in there youve done so well already ive just had my 2 nd chemo and im not sleeping look like a lobster feel sick food tastes vile cant drink anything cold oh how im longing for a lovely ice cold drink of water even but i cant steroids are doing god knows what to me and im now losing my hair bigtime but we will keep going we have to even if i look like an egg with legs  im going to beat this beggar and so are you take care hun love jen xxxx

  • FormerMember
    FormerMember

    Aw my heart goes out to you all x sorry you are having a bad time, just think it wont be too much longer and you will be on your way to RECOVERY !    

    Take care Biggles, Drew and Jenni big hugs xx

  • FormerMember
    FormerMember

    Hi Biggles, you hang in there,bless you! It's a hard old slog,no doubt about it but you can & will get to the other side! You stay strong and fight!!

    Big hugs, Alison.x

  • FormerMember
    FormerMember

    Hi Biggles,

    You get used to the Metalic taste after 12yrs. Stay

    with it.

    Take care Sarsfield.