Hmmmm my last blog just disappearred into cyberspace so I guess I have to do my rant about Auckland District Health Board again.
It seems that the ADHB have no record on their system of me starting radiation on Monday despite them having managed to send me a letter and a card. All they have down is an appointment with Professor Falcov, the radiation oncologist guy on 20th January... this is a Tuesday and Falcov only ever holds court on Wednesdays so it must be with one of his minions who look about 15 years old... or maybe it is just me who is getting old.
So.... on Monday, I am going to show up and demand radiation even though I never wanted it in the first place... what else can I do... then after that I will take over management of my treatment or not as the case maybe.
I am feeling better than I have in 30 years, my brain is working in all the places it counts and I have hair again (granted only about 1/2 inch of piebald mop). I won't have hair after the radiation and if it starts growing back once they do the operation to give me back a skull, I will be shaved again. I think they should put a little hinge on the skullflap so I can have a flip top head (like the toothbrush ad) and they can trim up the Ollie as often as they want... given that the radiation hasn't killed it all off in the meantime. I wish I didn't have the anaplastic version and mine had defined margins like a nice, well behaved brain tumour... then they could have whipped the whole thing out rather than 30%.... but of course, my tumour isn't a child and it is not about to do as it is told. I wish I could persuade it to commit suicide right now but that is not going to happen!!!
FormerMember
I pm'd you offering to meet you for your first radiation treatment but you haven't responded! C'mon girll let me know where u are at and i will pull out all the stops for you - on the condition that I am able to take care of my own needs !!
It all sounds rather unpleasant but I suppose you'll have to have the radio thing to shrink the fiend or at least stop it re-invading. Your brain's working fine at the moment - pity you can't maintain status quo but I expect they don't want it to grow back.
Anyway, the buggers have done OK for you so far haven't they? You're still alive and functioning and you say you feel better than you have for years - so you might as well trust them to the bitter end and have a bit of faith that they know what they're doing. But I think you should tell them to sort themselves out re appointments etc and explain to them (politely, if you can manage it!) that you really don't need to be fu**ed about with in your state of health! (I would have written 'fucked' but they're getting a bit fidgetty about swear words on this site. Oh dear oh me, I seem to have done it anyway.)
All the best for New Year. Don't do anything vulgar.
