Athenagreenfairy's blog

Good news... Ollie has nearly gone away after no chemo and me evicting it with bad thoughts.

My brain tumour has shrunk and changed in form completely. It is not aggressive any more and about 1/3 smaller and has become "locula" it has become about 8 fluid filled cysts that will reabsorb in time. I am so relieved that the past    2 years nightmare is over

Hi People it has been a long time since I have even visited this site. So there is good news: I got the panel beating job done on my head so I have a full skull of bone like normal people and I don't have to wear that stupid crash helmet all the time. That was done about 4 weeks ago and has healed up nicely though my whole forehead is still stingy. I think that during 10 months or so wait for the repair the scalp skin…

I am truly pissed off with this computer as it won't allow me to come into chat anymore and anyway I had a very quiet patch for a while there. But now, there is a flurry of activity...scans information and maybe going to the panel beaters to get my head fixed so here goes... Well I did the MRI which wasn't too bad on account of the sedation...That was nearly a month ago and I saw the oncologists and the haemotologists…

Today is D-Day that I have been waiting for for months. I am getting the MRI scan to see whether the radiation has stopped Ollie in his tracks. I hate MRIs so I have to go early so I can be heavily sedated first, but I am really anxious about the process. Can't believe that my sister actually volunteered for an MRI!!!! but then she has always been nuts. I won't be seeing the surgical team today, though, as they don…

Words can't describe how angry and disappointed I am!!!! I have talked and talked in chat and blogs about 29th May as being the day we scan and discover whether my tumour has shrunk or stopped growing or something useful. I was also going to see the surgical registrar too and was hoping to get some kind of commitment to a date for them to fix the hole in my head. The MRI is still happening next Friday but I got a letter…