Here we are 11 sessions up on the radiation and for a change I have been a completely compliant patient. I am normally a bad girl where hospitals and medical staff are concerned. So far I have had no side effects of the radiation bar a dry mouth which is dealt to with copious cups of tea and may or may not be a side effect.
The transport thing is sorted and for the past two weeks I have travelled to and from appointments in a beautiful limousine paid for courtesy of the government. It is nice to see my tax dollars being spent on something good for a change.
The absolute horror of my situation sometimes lands on me and it can be very scary. I have, so far, been funny and disrespectful about the "ollie" and I have always thought that the reason I couldn't generate an emotional response was because the right frontal lobe of my brain pretty much doesn't exist anymore, being taken over by the huge tumour, but just sometimes I realise that this invader could kill me and I am not impressed by that.
My adult kids are bored with caring for me although my daughter is not prepared to reliquish my power of attourney back to me. I am compis mentis like I have always been and able to handle my own affairs. I know she has done heaps of stuff for me and made things happen that I couldn't and on one level she likes the power but on another she is sick and tired of me and all the strain my illness has put on her. I truly hope that it doesn't end up with my taking legal action to reclaim my life so that I don't feel like a dependent child.
Am trying to put up a new picture of me totally glamourised courtesy of the LookGood FeelBetter trust. That was a wonderful experience and yeah I do feel heaps better since though I have to take care about the amount of makeup I wear when I am being radiated.
cheers Janet
FormerMember
Heh, Janet, what this? Compliant and well-behaved? Sod that for a lark! Maybe it's a side-effect of the treatment and will soon wear off.
Why does your daughter not want to relinquish power of attorney? I don't think she can refuse to do this. My dad has signed docs to give me P of A if he goes doodle lally but HE keeps the papers locked away in his secret briefcase (in the cubby hole in the hall, behind the chest of drawers) and a copy is with the solicitor. I don't think I could barge in and take over unless he was a danger to himself or something. (Or decided to marry an 18 year old bimbo and do me out of my inheritance!) I think you should take legal advice on this.
Kids! Who'd have them? Not me! I'm sure they love you really, but the strain of having you so ill is probably wearing them down. It's bound to, isn't it? It's always worse for the ones who have to watch it happen.
I think you're just down and drained with the poxy treatment. But you've started now so you might as well finish it and then you can have your lovely new skull. Besides, being feisty and rude and bolshy is bloody hard work sometimes so just have a rest from it all, enjoy the posh car and let them do what they need to do. You'll soon be back to your obnoxious self.
