Words can't describe how angry and disappointed I am!!!! I have talked and talked in chat and blogs about 29th May as being the day we scan and discover whether my tumour has shrunk or stopped growing or something useful. I was also going to see the surgical registrar too and was hoping to get some kind of commitment to a date for them to fix the hole in my head. The MRI is still happening next Friday but I got a letter to say that the neuro-surgery team has been cancelled until the end of July. I have been hanging onto that date since the radiation finished and I am disappointed that I won't be able to find out how I am doing for more months and my head won't be fixed for months after that... I wasn't able to get hold of anybody who could change stuff and won't be able to until Monday... hence the "impotent rage". I am going to be skulking round here like an angry bull all weekend. I will be the spawn of Satan and God help anyone who gets in my way.
I have been trying to get into chat for about 2 weeks now and when I have managed, there is nobody there anyway. I might try again tonight but I think I am due in bed soon. I am hoping to get a new (for me) laptop tomorrow which is a bit more powerful and faster than this load of garbage I am using now.
catcha Janet
