Back again....

Thanks everybody who commented on my last post. I got to see the oncology consultant on Tuesday and he was shocked to see how well I am... he was expecting somebody distinctly "seedy" when in truth I feel better than I have in 30 years since the golden days when I was first at university at Nottingham and topping all my classes before it all went to the dogs. Anyway he started wittering on about chemo which he knows I have totally refused with no room for any negotiation (at least my kids are on my side about this!). We talked to him about doing chloripramine (a tricyclic antidepressant) but basically we expect the cancer to be rendered into a chronic disease after the radiation finishes and we just keep an eye on things. He said he couldn't have put it more succintly, so maybe I am getting a bit of a handle on this brain tumour nonsense! Anyway only one week plus two days of radiation left... tomorrow is a public holiday and I am let off... and the two extra days are making up for two public holidays and the good news is that I don't finish on Friday the 13th but Tuesday the 17th. Then, in April or May I get that piece of skull replaced and I am hoping that I can then put the whole cancer experience behind me. Though not quite because the bad news is that I am not allowed to drive for three years after the radiation finishes according to the NZ road transport people. I think that is clever of them as most people with high grade gliomas will either be dead or too sick to give a shit about driving once they have served the three years. That, of course, won't apply to me. After three years I will be fit and well and ready to drive again (famous last words). I think that I will sell the old bomb as it will be more and more worthless as time goes on. I have had no bad side effects from the radiation except a bit of lost hair but it has already dragged on so long that it is the highlight of my day (note to self... I must get a life!!! and stop being such a boring bitch). . The new house is going well though I have unearthed boxes and boxes of shit that I forgot I even owned and at some stage I have to go through them... but for now they are hidden in the back of wardrobes. The broadband went on today and reminded me how slow and crappy this computer is but then it is at least ten years old. By the way "to onk" has developed into a verb for me... another example of my disrespect for the whole cancer process... so when I write that I have been onked today you will know what I mean. cheers Janet