It is intersting that I am feeling better than I have for literally years given that, on paper, I am a very sick chick.
Am starting to get out and about a lot more now that I can do that without a minder so long as I wear my crash helmet.
Yesterday, I went to a Christmas party at Autism NZ. They are the only organisation here that gives a shit about me. The Cancer society doesn't even want to know me even though I would fit into all their criteria for support etc.
I have had aspergers syndrome all my life... except the oncologist says that I have never had it and all the symptoms were the tumour. The same applies to my ME/chronic fatigue/fibromyalgia diagnosis. I thought that Autism NZ would drum me out but instead they have been kind and supportive and still seem to regard me as "one of them".
I think I am going to the gay service at St Matthews in the City later depending on a lift there. I started going to church when I was in the city hospital though I am absolutely non religious and only like the peace of big old churches and pipe organs... and, of course, the opportunity to sing (badly!) loudly and everyone is too polite to make a comment.
Nothng much happening here... haven't had any visitors all weekend and I have barely seen the other residents of the house. It is odd living with other people in an almost flatting situation and in some ways I will be glad to move out into my own house.
No word as to a moving date, but I have to give the penny pinching bitches here 3 weeks notice of leaving. It costs an arm and a leg and some to be here... though I can't for the life of me see what I actually get for my money. Maybe I am just turning into a querelous old bat in my old age....!!!
I started amy first period in months today, so menopause can't have really caught up with me... the last time was exactly three months ago and coincided with surgery. I thought maybe it had a little to do with the experience of anaesthetic.
cheers Janet
FormerMember
You do make me smile :)
Sounds like you are in top spirits.
The guy I just split up with after 4and half years has Asperger Syndrome so I know quite a bit about it. He was only diagnosed recently, which explained a lot about him. Its pretty uncommon in women tho, which may explain the reluctance of some people to accept you have it. Stuff 'em I say.
your positive attitude AND fantastic sense of humor do make us laugh. Just sending a hug and hoping all comes out right but best of all its great that you are feeling so well again despite your illness. Lots of love xxxxxxxxxxxxxxxxxxxxxxxx
Yes, you go on being a "querulous old bat" and give those hostel managers a run for their (your) money for the next three weeks!! I'm so glad you got to the Christmas party, and it is good that the old gang have not abandoned you - it's very intreresting what you have learned about the possible link-up and misdiagnosis of all your tribulations.
I agree about the singing in church - over here, churches don't have the music I knew as a child, and the hymns don't seem to have the same mystery, so I hope your service goes well.
You certainly have an amazing and very feisty attitude, and I'm looking forward to you being back on your own two feet, home-weise, so please keep us posted. xxxx Penny
