Thoughts from the frontline - 67

3 minute read time.

After my marathon blog yesterday about the past week I was glad that I spent Tuesday at home, resting.

But I do have a complaint about life and the dirty tricks it plays on you. Well me at least! :-)

Now I don't mind having diabetes and I have that under control with tablets, insulin injections, exercise and a healthy diet.

I, at the moment at least, don't mind the bladder cancer in that I am currently cancer free following the clear CT scan results about 10 days ago. I intend to have it under control and intend to fight a "oh my god it's come back" situation with exercise, a healthy diet and a positive attitude.

And I don't really have a problem with this "man flu" that I've got at the moment. I'm dosed up with lemsip and I'm sure it wont last forever.

However, the symptoms of the man flu have caused me a few moments of serious worry over the past few days. Waking up on Sunday after a late morning doze with the shakes was scary. I didn't feel ill, just had the shakes. Now I did have a drink the night before but not enough for a hangover or the DT's. So I did a little head panic and worried that my blood sugar levels had suddenly dropped for some reason. Now there was no logic there as I had had a wonderful bread and butter pudding for afters the night before. But I did need to do a blood test to check my levels before I got some peace of mind.

Well it didn't take to long before I knew it was a cold... sorry "man flu" and I started on the lemsips. But... ever since Sunday night until this morning I have been sweating like the proverbial every night and have woken up bathed in sweat.

Now that, as we all know is not pleasant, but for someone with a urostomy stoma it can lead to panic. Yep, you wake up thinking you've had a bag leak. And as the brain slowly wakes up you just feel the feeling and think "oh no, not again..."

Well that's my moan for the morning :-)

Now onto serious things. I've been using this website since soon after I was diagnosed in July this year and it has been a lifesaver to me. It has picked me up when I have been down. It has given me a hug and it has made me both laugh and cry with emotions.

I have made friends on here of some of the bestest people in the world, some I have met in reality and some just here in cyberspace.

This site is the people who use it, supported by the wonderful Macmillan people who sit in the background, taking stick from us when we want a moan but staying there with us.

This site is about getting and giving support to cancer sufferers and carers no matter who they are, rich or poor, brave or scared, old or young, terminal or "currently clear".

I use the blogs on here mostly so that I can write down my experiences and emotions, it is what helps me keep sane (well sane enough to function in polite society) but do go into the Bladder Cancer forum to check if I can help anyone in there.

I have also, but rarely, used the cancer information part of the website to check some facts but I don't really use anything else on here. So my question is...

What am I missing out on? What else could I do to help others on here?

Any suggestions welcomed and I'm sure it will help many people more than just me.

Love you all

Andrew xxx

Anonymous
  • Hi Andrew,

    You help others by simply telling your story.  Newly diagnosed patients in particular will take comfort from your account of your journey. It's great that you go into the Bladder Cancer Forum to offer a cyber hand to newbies too.

    About the 'weird' feeling you've been having - have you considered it may be an allergy to something? I discovered in recent years that I'm allergic to MSG and avoid Chinese food in certain restaurants. Worth a thought?

    Keep blogging,

    KateG

  • FormerMember
    FormerMember

    Goodmorning Andrew,

    Like you I blog for a few reasons

    1. It reminds me I have survived another day

    2. I hope some people gain something from it, whether it be laughing at my "brainfart" moments, or just being jealous of my "glamorous lifestyle of a brain tumour patient on one wage" ;)

    3. For something to look back on for my family one day.

    I don't use the forums much, I do belong the newly created Oligo group but there are only a few members and no one writes anything yet.  I haven't really taken to the brain tumour thread, perhaps as I am not that far into my own journey.

    I occassionally go into chat and at the beginning of my journey found a LOT of support there.  I don't feel the need to be there much now BUT I try to pop in every now and again to hopefully give back a bit of support.

    I don't think you are missing out on anything Andrew and I know I have directed someone to you because of your specific knowledge, so just keep doing what your doing mate.

    Love & Strength

    Debs xx

  • FormerMember
    FormerMember

    Hi Andrew

    Your blogs have certainly helped me in my cancer journey. They're a true and honest account of how we all feel. warts and all. I have laughed out loud at some of your accounts, and that's what I love about this site, you can have a good laugh despite what we're all going through. Laughter is the greatest medicine in the world. Carry on what you're doing Andrew, I know it's helping so many of us.

    Hope the man flu is getting better. I'm going for the swine flu jab today, so hoping there'll be no side effects (wishful thinking??).

    Angela x

  • FormerMember
    FormerMember

    Hi Andrew,

    Well the girls have said it all, just keep doing what you are doing, I know I have taken a lot of solace from your blogs and a few others on here, you guys have made this horrible thing not so scary and the information given has always been precise.

    Glad you are starting to feel a little better and hope the cat is making a speedy recovery too.

    take care love Terri xxx

  • FormerMember
    FormerMember

    Ditto what everyone's said here. As Debs says, the cyber army makes us strong.

    Take care, Monna xx