Cold Cap Dilemma

1 minute read time.

Hi all

More blood taken, more questions, more information I feel my head is going to burst and my blood is going to run dry by the end of this journey. I know a lot more big words now than i've ever known lol. Went through what is going to happen next friday chemo day, not sure if i'm still going to be ready for it. She gave me a DVD for me to watch about the chemo process, I put it on and turned it off straight away couldn't bring myself to sit through it.

She asked me if i had decided to have the cold cap to prevent my hair dropping out. Last week I was adamant that I wasn't having it, having one lot of discomfort was enough with out having another thing. But I keep looking at my hair and trying to imagine my self bald and I can't. My husband said it doesn't matter to him he will love me what ever happens and we will face it together, but at the end of the day I am the one who has to go through it. I said to the nurse i was going to try and sit with a bag of frozen peas on my head to see what it feels like lol. I have a week to decide whether to have the cold cap or not, decisions decisions. Did any of you use the cold cap? This is going to be a hard decision especially seeing that my 11 year old has said that he doesn't want to see me with out hair.

 One minute I'm ok then the next I feel that I am crumbling. Once the first cycle is over and done with I am hoping I will feel better because I will know what to expect for the next time.

Love and Hugs Amanda xx

Anonymous
  • FormerMember
    FormerMember

    hi

    I did not use a cold cap, couldn.t stand the thought of having to get my hea so cold, and it does make the chemo day much longer. Once my hair started to come loose I decided to shave it all off. I was a bit nervous abot letting people see me hairless, especially children and grandchildren  but everyone was fine with it. The grandchildren used to sit an masage my bare head! I even went so far as to attend a meeting bald. I did get a lovely wig, but to be honest, when I wore it  it just did not seem to be me, even though the style was similar to my own. The new hair started to grow almost immediately the epirubicin ended, but it has grown slowlw and it is a different colour, steel grey and it is rather curly!

    Take care

    xx

  • FormerMember
    FormerMember

    I used the cold cap throughout my chemo and other than add time to the treatment found it quite bearable. My hair did thin and I had a bald patch on top of my head however I felt this was better than losing it completely. Hadn't heard about wetting hair first may be worth a try. Good Luck. XX

  • FormerMember
    FormerMember

    Thanks everyone for your advice and experiences.

    I have made a decision about the cold cap, I am not going to have it. I have thought about it over and over and don't think I'd be able to cope with something freezing my brain as well as having poison injected into my veins. Still can't imagine what I will look like with no hair, but it is a small price to pay and it won't be forever it will grow back (as long as it doesn't grow back grey lol). I put eye make up on this morning without mascara and it didn't look too bad. I went shopping and had a look at different scarves but haven't got a clue how to put one on lol. At least thats one thing I'm going to learn to do lol.

    Four days to go before chemo starts, friends keep asking me how I feel about it. How can I tell them that I'm really scared, and wish they wouldn't keep asking. I know they are only concerned and don't mean anything by it, but when they ask it only brings it all closer.

    Thanks again

    Love and Hugs Amanda xx

  • FormerMember
    FormerMember

    I was in your shoes several months ago.  My head spun round when I heard I'd have to do chemo, radiation and tamoxifen.  I dreaded having a port installed, but knew I had to push forward.  

    I started chemo, have completed 4 cycles.  Will get through the next two and will be ready for radiation.  It's a process, one that will ensure the dreaded beast will not return.  With God's help, I am going to fight for myself and my family.  

    My hair fell out, but do you know what,  it will grow back.  My 9 year old daughter has seen me bald.  She was shocked at first, but has grown to adjust.  Kids are resilient.  I have a wig and plenty of hats that I wear daily.  I am getting through this and so will you.  

    I read this phrase on a magazine cover and it's so true.  It goes like this..." You are tougher than you think."  It's true you know.  

    Best of luck on your journey.

    Fondly,

    Luna

  • Hi I am due to start chemo in next couple of weeks.very interested as I believe it can stop hearing loss.im totally deaf in one ear and about half in other don't think I could cope be totally deaf at my age