Can anyone give me some reassurance

Hello

I have had painful bones, but never had radio.  I did have chemo though.  I had powerful painkillers after my op, and still had a lot left, so used them judiciously.  

I'm glad you have had a bone scan.  If there is anything untoward, they will find it, and take action.  Trust me, it is better to know than not to know.  However bad it is, they can at least treat it.  Then if it is at all temporary or intermittent, or doesn't show on the scan, it will go away on its own.  Mine did.  

You don't have to cope on your own if you need support.  We are all here for you.

love

Ruth

Hi Ally

Just to let you know i had bad bone pain while on chemo and also for quite a while after especially legs (and feet) as you say which makes getting around difficult, but this has eased over time.

I have also had bone scans which have shown up as normal no cancer apart from back disc problem which i have had for many years.

Think it is just time that you have to wait as it is to let the drugs work out of system, but possible that radio is making you feel worse as i did not do this, so have no experience.

Wishing you good news for your results and hang in there.

Hugs to you

Rose xx

I had quite a significant amount of bone pain which only started with my chemo-with-radiotherapy - and disappeared soon after the end of it.  The pain was not constant, but seemed to travel in waves up my legs - or, for a change, up my arms.  It was always symmetrical.  The doctor said frankly that she had no idea what was causing it.  

Have you been prescribed some painkillers?  Do you have someone else at hand to help you with activites such as shopping, cooking and cleaning?  Treatment really can be very tough if one is hit with intense side-effects, and it sounds worrying that you are trying to manage without your partner.  Don't be afraid to ask for help - you have to keep your strength up as even the travelling is exhausting.  xxxx Penny

Hi Ally

I didn't have chemo only radiotherapy. I therefore didn't have bone pain which does seem to be caused by the chemo. The tiredness which the docs quaintly name 'fatigue' is something which seems to start midway through radiotherapy and increases in severity until the end then slowly wears off again. Some people sail through radiotherapy and good luck to them but I found it to be an all-consuming, soul-eating tiredness. You're very brave going through all this on your own. Can't someone stay with you for a while and take on some of the chores? Please also talk to the radiotherapist and tell them how you're feeling. One of their suggestions to me was to drink lots of water (boring - I rather a triple scotch, thanks) which did help a bit. Don't suffer in silence - there's being brave and there's being a door-mat!

All the best,

Regards

KateG

Thanks for your comments.

The pain was less last night and I managed to get some sleep. I feel much better. The bone scan results are still not back yet, I am told to ask again on Monday. I am sure it will be fine but at 2a.m. when your imagination runs riot it can be quite frightening.

I am trying not to be a burden to my family as over the last 2 months both my brother and my sister have lost an adult child. My sister's 22 year old son died at the scene of a car crash, there were no other cars involved and we don't know what caused it.

Eight weeks later to the day my Brother's 20 year old son died as a result of an epileptic seizure whilst waiting for funding for an operation to control the fits.

I am not trying to be a martyr but having gone through these tragedies

with my brother and sister I feel I should not and could not complain.

That is why it is wonderful to have the on-line community to offer support.

Talk soon

Love Ally xx