adintnah's blog

Well I went to hossy for my monthly blood check, I was determined to find out what the results of my MRI scan is. The scan was in June and despite me asking in the July clinic at which I was told that they can take some time but my stand in doc would chase them and let me know. It got to August clinic and still no word, so I made my mouth go a little. This time it was my own specialist that said he would chase it and…

I had an appointment with my consultant today. We sat, we talked and then the consultant said....... 'Well Keith, I am pleased to say that since your Stem Cell Transplant in March. all of your blood tests have failed to show any protien in your blood'. That took a while to settle in and when it did I had to ask 'Is that good.' He smiled kindly and said. 'Yes you can say that is a good thing.' YIPEEEEEEEEEEEEEEEEEEEEEEE…

At my weekly clinic visit yesterday, my Key Nurse handed me a booklet highlighting the in's and out's of Stem Cell Harvest and Transplant. We have spoken about it before but that seemed so long ago it is in the dim and distant past. The Doctor is happy with my progress and wants to schedule a multi diciplianry care team meeting with me and my family and the team to discuss STH&T. I have to say there are a lot of questions…

I am coming to the end of my fourth cycle of CTD treatment. Each cycle lasts for three weeks, starting on a friday and finishing three weeks later on a Thursday when I see my consultant. The treatment is all self medicating and consists of me taking chemotherapy tablets every Friday. followed by a very well regimented and managed regime of dexemethasone (steroid) and Thalidomide. The Thalidomide I take on an evening…