It's not just chemo that whacks you with lethargy, radiotherapy does it too. Why didn't I know that...?

1 minute read time.

Felt good on Monday morning, one week after chemo, 2 days of no radiotherapy. Two sessions of radio later, I feel exhausted again and needed two kips during the day today. All fairly normal apparently, but for some strange reason the side-effects of radio are much less well known than those of chemo. This is not because they are less powerful - even a cursory surf on the net shows this not to be the case and they include, just like Chemo, fatigue and nausea. In my particular case I have been told in no uncertain terms that it is the side-effects of the radio that will hit me most. Yet there seems to be some deep-rooted perception out there which, in my ignorance,  I used to share, that it is chemo that has the big side-effects. Not so, boyo, not so: it depends on the case.

Perhaps it is the hair loss provoked by chemo for breast cancer that makes us think this, because it is easily visible. I see many women (I want to say sisters, even though I am a man) at my cancer centre with headscarves. That's a tough thing, which does not mark us men out as cancer patients in the same way at all. In fact, as a man, I would happily swap my hair for less nausea, fatigue, mouth sores and the return of the taste of food - and people would think I was just another slaphead (heading there anyway!). 

I do not mean to be flippant. Hair loss is traumatic, impacting hugely on identity and self-image and no doubt confidence. But it is only one side effect, and those suffering it must in most cases also suffer the many other less well-known side-effects including those that come from radio. It just seems strange to me, and it is no doubt a sociological phenomenon not one based on the realities of side-effects, that radio side-effects are not widely known.

Anonymous
  • FormerMember
    FormerMember

    Cimbibed radiotherapy and chemo is a real bitch

    Some chemo treatments have very noticeable side effects like hair loss. I had Cisplatin which doesnt make your hair fall out . It just makes you sick and very tired

    The Radiotherapy side effect on the throat is mucositis

    90% of throat cancer patients receiving radio will get this. I couldn't eat or drink for 2 months and lost 40lbs. It felt like barbed wire In my throat. However 6 months after radiotherapy I'm eating 'normally'.

    Be aware though radiotherapy continues to cook you for a few weeks after

    6 months out and I'm still chronically fatigued and have been told not to 3xpect to feel anywhere like normal for at least another 6 months

    On that happy note we are all different and your side effects may be better or worse than mine.

    The only thing I'm grateful for is that to feel the side effects I must be alive

    HAPPY DAYS

    Good luck to you all

  • Thanks Denzilpants. Really helpful to know what to expect! My treatment ended 10 July and so far my journey sounds pretty similar to yours.

  • Thanks Denzilpants. Really helpful to know what to expect! My treatment ended 10 July and so far my journey sounds pretty similar to yours.

  • FormerMember
    FormerMember

    No worries

    The only way I've found to help me feel normal is to set my expectations alot lower

    A good friend of mine told me his mantra about managing expectations

    He said 'it takes twice as long to achieve half of what you wanted to achieve'

    Good luck