Groundhog Days

1 minute read time.

I am settled into the weekly Paclitaxel cycle now, with no further incident. But it does feel like a series of groundhog days. 

Wednesday afternoon infusion means around 4 hours at the hospital to get through the pre-meds, flushes, steroid and antihistamine infusion, more flushes, chemo, more flush and heparin. Wednesday evening I am ok but have a patchy night’s sleep.

Thursday I am able to go for a swim and a gym class but become increasingly steroid-wired during the day. Sense of taste disappears,  I get a bit irrational and weepy, then I barely sleep.

Friday feels less good due to the lack of sleep  Taste still gone  

Saturday and Sunday I feel like I have been in 5 rounds with Mike Tyson but my taste comes back and I sleep slightly better.

Monday I might be a bit tired but am coming back together and Monday night is the first night I sleep properly  

Tuesday, relatively normal except I have to make time for a blood test. Start to get a bit anxious about the chemo, which affects sleep again.

Wednesday morning is normal.

And off I go again  Just 6 more weeks of this  

Plus my CT scan results still aren’t back  

Anonymous
  • I've not been waiting as long as you, but my CT "report/analysis" from 2.5 weeks ago are still not back.  Oncologist says there is a nationwide shortage of radiographers and my region is worse than the other regions he deals with ie longer delays.  Just got the image-only for mine.

  • That’s the same explanation I was given other than they didn’t say anything about regional differences. Glad these aren’t scans needed to determine initial treatment 

  • Hi  checking in! I’ve had my first cycle. Feeling not too bad but have you experienced odd stomach pains at all? I’ve had more hot flushes like you but I think it might be cold turkey from HRT. How are you doing emotionally? 

  • I get abdominal pain but not stomach pain. No hot flushes but I am well past menopause. I am ok emotionally, will write up another blog entry this week after I have had my oncology review and my appointment with the radiotherapy consultant. Getting close to the end of planned treatment now, thank goodness. Hope you are well.