Good afternoon, my partner was diagnosed with myelofibrosis about 3 years ago but these past few months his health has declined and the bloody transfusions don t seem to be working, the consultant has now stopped all treatment as tumours are appearing…
Hi everyone,
I am new here and am glad to have come across this wonderful resource.
Caring for my husband is extra challenging and stressful for me at times because I have long believed that he also shows many characteristics of autism and ADHD. He has…
Hi Christine MONTINHO, I just noticed your post. You may want to join and post in our new group that covers rare blood cancers like Myelofibrois - just follow this ling MDS/MPN/ET/PV/myelofibrosis (MF)
Hi there,
I’m hoping just to get some advice regarding my Dad. He has just been diagnosed with Myelofibrosis and I’ve a feeling that he’s far on. He slept all day yesterday and didn’t eat anything. He is also very short of breath.…
My husband has myelofibrosis and I need help with understanding what stage we are at
My husband has lived with ET for 25+years and has recently been diagnosed with myelofibrosis. Prognosis 30-40 months unless he has a transplant. I am self employed and he works in a sales role where a large proportion of his income is based on sales.…
