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  • Myelofibrosis

    Peggy Sue
    Peggy Sue

    Good afternoon, my partner was diagnosed with myelofibrosis about 3 years ago but these past few months his health has declined and the bloody transfusions don t seem to be working, the consultant has now stopped all treatment as tumours are appearing…

    • over 1 year ago
    • Supporting someone with incurable cancer forum
    • Supporting someone with incurable cancer - Discussion Forum
  • Caring for a partner who has a skull-based meningioma and a new diagnosis of myelofibrosis (cancer of bone marrow)

    Apricots
    Apricots

    Hi everyone,

    I am new here and am glad to have come across this wonderful resource.

    Caring for my husband is extra challenging and stressful for me at times because I have long believed that he also shows many  characteristics of autism and ADHD. He has…

    • 6 days ago
    • Brain cancer forum
    • New here, say hello
  • RE: Myelofibrosis- Hi my name is Christine and my dear husband has this disease.

    Thehighlander
    Thehighlander

    Hi Christine MONTINHO, I just noticed your post. You may want to join and post in our new group that covers rare blood cancers like Myelofibrois - just follow this ling MDS/MPN/ET/PV/myelofibrosis (MF)

    • 8 months ago
    • Myeloma forum
    • New here, say hello
  • Myelofibrosis

    Dynamic
    Dynamic

    Hi there, 

    I’m hoping just to get some advice regarding my Dad. He has just been diagnosed with Myelofibrosis and I’ve a feeling that he’s far on. He slept all day yesterday and didn’t eat anything. He is also very short of breath.…

    • over 2 years ago
    • New to the Community forum
    • New to the Community
  • my husband has myelofibrosis and I need help with understanding what stage we are at

    grianaig
    grianaig

    My husband has myelofibrosis and I need help with understanding what stage we are at

    • over 3 years ago
    • Carers only forum
    • Carers Only - Discussion Forum
  • Financial support for patient with myelofibrosis awaiting BMT

    Anonymous
    Anonymous

    My husband has lived with ET for 25+years and has recently been diagnosed with myelofibrosis. Prognosis 30-40 months unless he has a transplant. I am self employed and he works in a sales role where a large proportion of his income is based on sales.…

    • over 5 years ago
    • Ask a Nurse
    • Ask a Nurse
  • myelofibrosis

    FormerMember
    FormerMember
    i have been diagnosed with myelofibrosis since may 2008 and connot find anyone else that has this rare disease. if anyone out there has or knows anyone who has this could they please get in touch. myelofibrosis is a blood disease that eventually becomes…
    • over 13 years ago
    • Cancer Blogs
    • ekelly's blog
  • let me fight myelofibrosis

    FormerMember
    FormerMember
    hi all my name is eileen i have myelofibrosis and have been told its terminal by the heamotologest and nothing can be done except blood transfusions and pain relief. i have just been reading part of this amazing site. i have actually found some other…
    • over 13 years ago
    • Cancer Blogs
    • ekelly's blog
  • Naugus

    Watchful waiting with Myelofibrosis
    • Cancer Blogs
  • Other cancers forum

    Myelodysplasia (MDS) & myeloproliferative neoplasms (MPN).

    A forum for anyone looking for support with myelodysplasia (MDS) and myeloproliferative neoplasms (MPN) including essential thrombocythaemia (ET), polycythaemia vera (PV) and myelofibrosis (MF)
    • Other cancers forum
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