5 days post surgery

Good morning PobD, Iam so pleased to hear that you have had your surgery promptly and that it went well. You just need to continue to take one day at a time and be gentle on yourself. Iam no expert, having only been diagnosed with womb cancer just before Xmas, having scans now and then have wait for plan and date for hysterectomy. So iam a bit behind you on this journey. However it is clear from reading posts on these forums that each stage of this can prove challenging and talking and seeking support at every stage is really important. Sending you lots of love and positivity, it takes time to process all this stuff. 

Hi

I'm very similar to yourself.

Most of my stress came during the night for the 3 weeks from me going to the GP to getting my results, all my worry was “what if I have cancer”.

I was diagnosed with stage 2 endometrial cancer on the 28th Nov and had my surgery on the 30th December. We had a plan for each step, so that was my only focus.

 I can see everyone around me is in panic mode. My other half doesn't sleep, my adult sons are suddenly ringing every day and my mum is popping round constantly and looks like she has the weight of the world on her shoulders.  I'm sleeping like a baby and just say I'm fine which I believe I am.  I don't feel sick, just sore from surgery. I'm not sure how we're meant to feel. Maybe it will hit me at some stage.

I'm now waiting for my histology results. My surgeon told me the morning after my hysterectomy, that I will definitely need radiotherapy so maybe that's when it will finally sink in.

You are certainly not alone in your feelings, I don't think there's a right or wrong way to deal with this.  This forum is full of women going or gone through exactly the same. We are all individual and deal with things differently.  I personally have really benefited from reading and chatting with others on here.

Hi PobD

Welcome to the Womb group.

I am sorry to hear that you had a diagnosis of womb cancer. I hope that you are recovering well from your hysterectomy. I think it is common to feel that everything happened in a sort of whirlwind- I know for me it all happened quickly. I don't think I had time to digest or process it all until at the end of treatment. I also remember feeling a bit in limbo after surgery whilst waiting for the post op results. 

Hopefully you won't have to wait too much longer for your post op results. In the meantime we are here when you need us. 

Jane

Thank you for replying.  I’m sorry you are going through this as well. I hope you get your dates for surgery soon and positive outcomes.

u think that was the worst part for me was waiting to see the consultant and find out exactly what was happening. I hate not being in control.

i agree talking certainly helps. I was very open with people about my diagnosis and whilst I was working I was also distracted. Now im resting at home it felt like those communication channels had closed so I found these forums and it’s reassuring to hear others journeys and to know im not alone.

Thank you for replying. My surgery was also on the 30th. I hope you are recovering well. I kind of feel in limbo at the moment. I came home the same day and apart from a follow up call the morning after from a nurse to check all was well I haven’t heard anything at all: 

i know what you mean about people worrying. I know my husband and family are more worried than me. I feel numb to it all. Sometimes I want to say I’m not sick but I guess the reality is I am.

i can’t control what is happening so I control what I can and that has been shielding my girls from as much as possible

Thank you for replying. It’s good to know that others have also felt the same way. I was beginning to think it was just me.

i kept telling myself it would hit me after surgery and now im waiting for histology im telling myself the same. I just kind of feel numb and like it hasn’t been real.

im hoping i will get the answers i want next week and then once i know what’s happening i can move forward.

thank you for all the support.

Numbness. surreal and in limbo was how I felt. And sort of flat. It did pass though once I knew what was needed in further treatment and once that was up and running.