Diagnosed and surgery approaching fast

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Hi everyone. 

I was diagnosed with endometrial cancer which has spread to the cervix (grade 1 stage 2) on the 28th of November. I then had a CT scan which has shown no further spread which is a relief. I'm 48 and peri menopausal. 

Things have moved very quickly since then. I have been moved to a different hospital and my operation is planned for the 30th December, in 2 days time.  

I am having a total hysterectomy and sentinel node biopsy, and the bit I'm not totally sure of but I believe it was removing tissue on the wall where the womb was. I've been given so much information and must admit it's really hard to take everything in, between myself and my partner I think we just about did it.

I have really struggled this month to get myself in the mood for Christmas, I normally love it and  i've felt so guilty as I feel  like I've put a downer on the Xmas period for my whole family,  although everyone around me disagrees.

I don't talk about my surgery or say out loud that I have cancer,  I think maybe if I don't think about it it's not happening. However this morning with 2 days to go I've woken up and panic has set in and I'm finally reading all the booklets.

  • Hi Michelle and welcome! Really pleased for you that you have your op date so soon - this time next week you should be home, recovering and on the up! I was diagnosed in November 2021 and had my hysterectomy in January 2022. Post op histology was grade 1 stage 2. Have you packed your hospital bag yet? Would you like any suggestions? For me, the best things I took were my own pillow, my own snacks, and an extra long charging lead for my iPad!

  • Hi Michelle

    Welcome to the group. Am sorry to hear of your diagnosis of endometrial cancer. 

    Things can sometimes feel as they are moving very quickly and it can feel a bit overwhelming at times. Its good that your surgery has been arranged for the 30th and if you are like me you will just be glad to get it out of the way. 

    Not surprised that Christmas felt a bit different this year- it is bound to in the circumstances. 

    I hope that your surgery goes well on Tuesday and in the meantime if there is anything you need, please do ask. We also have the Support Line available from 8am-8pm everyday if you feel like talking things through would help. 

    Jane

           

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

  • Thank you.

    I am packing in the morning, the long charging cable and my own pillow are a great idea. 

  • Good morning! How’s the packing going? Are they aiming for laparoscopic surgery or are you having open surgery? Some sweets to suck post op is a good idea too in case your throat is a bit sore or dry due to the anaesthetic.

  • Thank you, another really helpful tip. Yes I'm all packed.

    They are aiming for laparoscopic,  so fingers crossed as I've been told it's only 1-2 nights stay and a quicker recovery after. 

  • Good luck for tomorrow.

  • Mine was laparoscopic - walked down to theatre about midday, was awake in recovery 4 ish, then up to the ward, awake most of the night but slept a little, then catheter out at 6am and I hopped straight out of bed and didn’t return to it! Instead I walked around or sat in the ward armchair by the window playing word games on my iPad! 

  • Good luck for tomorrow Michelle

    Linda xxx

  • If you have one a vacuum flask or a travel mug is good for keeping a drink warm, you dont usually get them when you want the,. A sleep mask and ear plugs can be handy too - hospitals, IME, are too hot, too bright and far too noisy! 

    You'll soon be in recovery, just take it easy. 

  • I thought I'd give a quick update. My surgery went well, I had a hysterectomy, they also managed to remove the affected lymph nodes rather than take them all which is good news and they had to take a little more tissue from the area than they were initially going to, all was done keyhole.

    My surgeon was very confident he got everything and did tell me there would be further treatment needed, most likely radiotherapy, I now have to wait 3-4 weeks for the results.

    The team at the hospital were absolutely amazing. You can tell they are all over worked and under staffed but everyone took the time to make you feel at ease, give advise or just have a chat.

    Thank you everyone for all the advice, to help make the stay a little easier. I was first in to surgery, so by the afternoon I was up and mobile and I've made sure I've kept that way since. I'm now back at home, I'm one of those people who potters around the house but for once I'm listening to my body and letting myself be taken care of.