Hi Everyone.

  • 3 replies
  • 96 subscribers
  • 86 views

I’ve just joined. I thought I was doing well coping but I’m not. 

I was diagnosed with Stage 3C1 womb cancer this September. 

Exactly a month ago I had a full hysterectomy, lymph nodes removed and a part of my muscle removed. I can’t remember the name of it. My recovery has been okay but I’m still pretty sore and very frustrated.

On Thursday, I’m going back to the hospital to find out what grade the tumour was and the MDT’s treatment plan for me. 
Unfortunately, I have all the markers for the Lynch gene. I need to wait another 6 months for that to be confirmed by the Genetics Team. 

Anyway, I wanted to say hello to you all, I’m having my treatment in Wales and staying with my elderly mother but my home is an island off the West Coast of Scotland. Beautiful but not great for travelling to hospitals etc, 

  • Hi Blueair

    Welcome to the womb group.

    I am sorry to hear of your diagnosis of endometrial cancer. 

    I found the bit between the surgery and waiting for the post op results quite hard. Everything felt up in the air and I just needed to know what lay ahead. I got my results at around 3 1/2 weeks and showed that I needed some follow up treatment. 

    I hope things go ok on Thursday and in the meantime if there is anything you need, then you know where we are. We also have the Macmillan Support Line available from 8am-8pm everyday if you feel like talking things through would help. 

    Jane

           

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

  • Thank you Jane.

    I’m fairly confident that chemotherapy will be part of my treatment. It’s been hinted at but never been said outright. I’m not scared of it but like you, I need to know exactly what is ahead. I’ve never been very good with the unknown. I’m too impatient and just want to “get on with it”. Still there’s only one full day to wait. 

  • If you click on my name my profile will come up and it gives an idea of timings. 

    I would think follow up treatment is likely if your stage is confirmed with post op results.

    I had 4 cycles of carboplatin and paclitaxel and this was followed by the radiotherapy. It did feel overwhelming when it is all ahead but it did go more quickly once I had the first session out of the way. My chemo started 6 weeks post surgery and then the radiotherapy started at the end of the last chemo cycle. So they do tend to get on with it when it is needed. I know that I was keen to start it as the sooner it begun I could start ticking off those sessions. 

    Jane

           

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm