Hello
My name is Jane and I'm new here
Was diagnosed only yesterday Friday 28th Nov.Grade 2.
Going to be receiving a phone call from a nurse on Monday to discuss next step and my ct scan date I suppose.Been told I will need a hysterectomy which I'm not really worrying about.
At present I just feel scared and in denial I dont want to read the pamphlets in the pack I was given by consultant. I'm not ready for that yet.
I'm not a positive kind of person the glass is always half empty so I'm not sure how I'm going to get through this.But I know I have to.
It's nice tk have a forum like this so I can talk to others who are or have been going through this
Hi Jane
Welcome to the womb group.
I am sorry to hear of your diagnosis yesterday and I know it is a worrying time for you.
No need to read any pamphlets until you are ready and even then it is up to you.
Focus instead on what you do know. On Monday you have a phone appointment and it will go through the next steps.
It is normal after a diagnosis to be sent for a CT and/or MRI scan and the purpose is to provide a provisional stage for the cancer- where it is in the body. Once they have the provisional grade and stage they normally then put it through a MDT meeting (where the professionals get together) to come up with the most effective treatment. They will then meet with you and take into account your wishes.
For most ladies where it is medically possible the hysterectomy is the first line treatment. Mine was in 2022 and was done via key hole. It was pretty straightforward really and I recovered quickly. I spent 1 night in hospital.
After surgery anything removed is sent to pathology and at some point there are post op results that confirm the stage and grade and a few other bits and it is these that determine whether any follow up treatment may or may not be advisable. For some ladies the surgery alone is enough. I had some follow up treatment and then went on to check ups for a couple of years.
There are many lovely ladies on here who have been where you are now and will understand how you feel and will want to offer you support. Do ask if you have any questions.
Sometimes it can help to talk things through with someone and we do have the Macmillan Support Line available from 8am-8pm daily.
Good Luck for Monday- I found my CNS really supportive. It can also help to write a brief list of any worries/questions that you may have. I know my mind would go blank sometimes.
Jane
It is hard not to worry. I lost my appetite too- may be try a few snacky like things that you normally like. I remember my emotions being all over the place. Once I had the scan and results back and a plan for treatment- I did feel a bit better. I then focussed on the preparing for the surgery- getting things ready at home etc. Sometimes the practical things can help. Like doing a big shop, having a good clean and tidy and even things like packing a bag for hospital helped. Sitting and thinking made me feel worse, doing things, going for walks etc helped.
Talking can help but only when you are ready. Not long until Monday and you should have a bit more of an idea of what is ahead. For me the scan was done quickly, results came back around a week later. My surgery took place 4 weeks from my first symptom and visit to hospital. So it can move fairly quickly.
The stage you where you are at the moment is tough because you have just had bad news but you are still a bit in limbo until after the scan and before the treatment plan is in place.
