Hello
Welcome to the Womb group.
I am sorry to hear that you had a diagnosis of endometrial cancer and needed surgery.
All the feelings you describe sound very normal and I agree could be all those feelings catching up with you. I know for me things happened really quickly and there wasn't much time to process things at the time. Once the treatment was done there was more time to think things through.
I understand that you feel the way you do about the choices of having a baby taken away and at your younger age it must have been tough to undergo the hysterectomy. It does make it seem final and takes away the choice.
I know for me and many people who have been through cancer the thought of recurrence is a common fear. It sounds like yours is low stage and that is a good thing. Normally after surgery you will have your post op results that will confirm the final stage and grade. It is these results that they use when deciding if there is any follow up treatment needed and whether there is a need for follow up checks.
I had some further treatment and then for me I was put on face to face appointments for 2 years. During these appointments I had examinations and was asked questions and basically they look out for signs the cancer may be recurring. Once you have your final results they will be able to tell you what happens next. It may well be that with an early stage diagnosis that they just go through signs to look out for and what to do if they happen.
For me it is about knowing the signs that might mean a recurrence and then contacting my CNS for support.
For the frequent urination at night, this can happen but it is best to mention it to your hospital- there should be a number on your discharge paperwork. Alternatively you could contact GP. You are still healing inside and our bodies can take quite a battering really. However it would be wise to rule out any infection etc.
You can also mention the difficulty sleeping and whether this is due to worrying about things or whether there is anything physical such as pain. I know for me I had a lot of bruising and discomfort from the anticoagulant injections into my tummy.
I thought that once treatment finished I would feel over the moon and feel like celebrating. In fact I felt quite flat for some time. I needed time to recover from the treatments, process them and just allow time to heal. You have had an awful lot happen in a short amount of time and are still very much recovering from major surgery- it is bound to knock you sidewards for a while.
Why not give the Support Line a call and talk things through. They are lovely on there and available from 8am-8pm daily. Do also continue to reach out on here if we can help in anyway.
Jane
