Hello all
Head is in a spin a little. My consultant phoned me after reviewing biopsy results following the myosure procedure to remove a polyp and a biopsy of a thickened womb lining. She told me that I have hyperplasia with atypica and asked me what my build was as she could not remember from seeing me, in June.
She said that wasn't cancer but could develop into cancer if left. That part I follow.
I said I was heavy but had lost 2 stone since spring. I am on track to lose two more by Christmas (on MJ). She said there were some risks from surgery and then described the coil treatment and then reviewing me again after 3-4 months. I will be honest, my head was in a spin on that phone call as she was talking fast and I needed some time to take in what she was saying. I think I ended up saying yes to the coil (is that what is called hormone therapy?)
Now that I have had another day to read patient info websites (trying not to Dr Google) and the Royal College briefing for docs, I see that in hyperplasia with atypia, the Gold Standard treatment is a hysterectomy. I think I would like that but now am scared that I can't have it.
I am fit, exercise 3 times a week, resting HR of 64, and no other health conditions but I am heavy. I looked thin when I was 11 stone.
I don't know what the waiting time is for a hysterectomy in Scotland and am worried that by saying yes to getting a coil fitted in September, I will then be dismissed from waiting list to have a hysterectomy. I am worried that I should just be saying yes to getting a hysterectomy straight off, as reading that 8 out of 100 people with atypia go on to develop cancer makes me feel I have a ticking time bomb inside me.
Do any women on here have any experience of being in the dilemma where, if you were in the normal bodyweight range, you would get a hysterctomy straight away?
Does it sound like I am taking the right course of action, trying to lose another 2 stone for Christmas to get my weight down a bit? Is it a race against time with these pre-cancerous cells? Do they change quickly? Is this even known?
I would appreciate any opinions. Thank you. I feel a bit anxious.
very hard to predict how fast cells can change as there are a lot of factors- however if you do get the mirena they will continue to monitor you and also likely do the repeat biopsies- so IF something does change then they will pick it up very early.
I used to write a list of questions and take it with me and that helped.
