Hi
I just wanted to introduce myself and give you my story so far
I am 60 years old - just - and in January I had a small PMB, I had occasional pelvic pain prior but nothing too consistent
I arranged to see my GP who referred me on the 2 week pathway for TVUS, I have multiple fibroids so had in my head attributed the previous pain and minor bleed to those and thought everything would be signed off and away I go
On the day of my scan the systems were down so the nurse was really working blind as could not get to my previous scan of 5 years ago to compare, but all going well and just as about to finish she said oh I think thats a polyp I will have to take a biopsy and also perform your smear test as due
Fast forward 2 weeks and I get my results - biopsy and smear all fine no abnormal cells found but due to the suspicion of a polyp I would be sent an appointment for outpatient hysteroscopy
My health anxiety by this time is through the roof and come hysteroscopy day I was terrified and in quite a bit of pelvic pain, my anxiety always seems to manifest as pain in this area. Anyway I get into the consulting room and happen to mention I was doing some at home Blood pressure monitoring to see if medication was needed - so they wheeled in the BP machine and lo and behold my BP was 200/90 so procedure cancelled and advised ot seek GPs help with BP. This was all sorted same day - I have a fantastic GP
I could not face the proceedure and anxiety it causes awake again so asked for GA which was done March 9th and afterwards the surgeon said all looked good, biopsy taken as standard expect results in 4-6 weeks
12 days ago I get a call to book a face to face appointment to review my results - off goes the old anxiety again and the last 12 days have been torture as the person booking the appointment did not mention it was to see a Gynae oncologist i found out when I received the appointment letter a few days later
Fast forward to today i am still hoping its the pesky fibroids as these are tumours and although benign can be dealt with by an oncologist I was not expecting to be told, the biopsy under GA had shown abnormal cells - probably a small cancer and I would need a total hysteroscopy
MRI booked for this coming Friday and chest xray - my MDT meet on a Thursday so have to wait until next Thursday afternoon or Friday to see what stage they think it is, from the biopsy they are looking possibly grade 1 but obviously it is so hard to truly determine just from a small sample. The MRI will also determine if my procedure is totally laproscopic as it does depend how the fibroids lay in my womb and if they will come through vagina
All in all its been a long slog but I am suprisingly calm now, I have a diagnosis, not the one I wanted but hopefully by end of May the surgery will be done and I can start my recovery.
Has anyone else had negative initial tests and then be told there is a cancer and we need to remove your uterus?
I have joined to share my story and my ongoing journey and am happy to connect with others who are going through the same thing or who are coming out the other side
Thank you for reading
Welcome ..
Yes affer a PMB I was told during my hysteroscopy back in April 2024 , there was nothing to see nothing to worry about , taking biopsy was just procedure etc one week later told over the phone we found something nasty..
Was told grade 1 ..
July 24 I had total hysterectomy removal of womb , ovaries , fallopian tube , cervix and surrounding tissue ..keyhole surgery .
3 weeks later my cancer was upgraded ..
September I began 23 rounds of external radiotherapy and 2 rounds of Bracktherapy
November I began 4 rounds of Chemotherapy..
I ran the bell in January !
Getting stonger every day !
Hair is growing back lovely 
Its a total shock and seems like a long road ahead ..
But you will get there stay positive , take one day at a time .prepare any questions you would like answered .stay off Google..
Use your CNS and this group both great sources of support
Best wishes on your journey 
️
Hi Kazeroo
Welcome to the Online Community and the Womb group.
I am sorry to hear of your diagnosis of endometrial cancer and that it took time to actually be confirmed. I also felt better once I knew what I was dealing with.
It sounds like you shouldn't have too long to wait for your surgery and I hope it goes well for you.
In the meantime if there is anything you need, then you know where we are.
This link takes you to some info that you may find helpful.
Womb cancer booklet | Macmillan Cancer Support
Jane
