Endometrial Cancer - recently diagnosed

Welcome Florrie even if you didn’t want to be here. Sounds positive that it’s contained within the uterus.

If your MDT are discussing tomorrow, you should hear about your treatment plan fairly soon now, and then hopefully not having to wait too long for this.

Sending you good wishes in the meantime.

Hi there and welcome. You are in good hands on this forum there are lots of ladies who are very knowledgable.

i was diagnosed in Jan this year and im now 5 weeks post hysterectomy. I’m lucky mine was caught early and I do not need any further treatment. 
I am 53 and apparently do not fit the usual criteria for this cancer but I am waiting for genetic testing to see if that is the cause. 

This forum is a good place to turn please do not google anything. 
I won’t lie it is a journey but your team will come up with a plan for you.

thinking of you 

Hello Florrie

It sounds like you are getting the treatment you need, I hope it's good news from the MDT.

H 

Hi Florrie

Welcome to the Womb group.

I am sorry to hear that you had a diagnosis of endometrial cancer 2 weeks ago. The scan and then the MDT is the normal next step. 

It sounds promising that they feel it is confined to your womb. 

For most ladies the treatment is a hysterectomy where it is medically possible. Mine was done in April 2022 and it was fairly straightforward. I had little pain and was home the next day. I recovered well from the surgery. For some ladies with early stage and grade cancer the surgery is enough. For others some follow up treatment may be recommended. 

This link will take you to some information that you may find helpful.

Womb cancer booklet | Macmillan Cancer Support

Having a diagnosis of cancer can be a stressful time so if you feel like talking things through would help, then please do give the Support Line a call. They are there from 8am-8pm daily. 

I hope that you hear from the MDT tomorrow and that a treatment plan is put in place. I found it felt a bit easier once I knew what was going to happen and when.

If there is anything you want to ask about or need, then you know where we are.

Jane

Hello Florrie, I was diagnosed in summer 2022 and had a hysterectomy, chemo, radiotherapy and now undergoing immunotherapy.   If I can be of any support do ask.   It is certainly a club you don't want to be a member of but I have found people to be enormously supportive.   Let us know how you get on meeting your consultant following the MDT meeting.   Sending very best wishes, Gillian

Thank you all so much, I really appreciate it.

The MDT have advised my cancer is grade 1, stage 1b and my gynaecologist is now passing my care to a regional gynaecology cancer centre. It’s been discussed that there is likely to be a perioperative test to target nodes that might be of interest and can then be targeted in my hysterectomy. I’m feeling anxious, but hopefully another step forward. Not sure of timescales - has anyone else been in this position? 

Thinking of you all

May I ask the reason you are having immunotherapy..your the first person I read that has recieved this treatment along with the radiotherapy and chemotherapy. Hope you do not mind me asking..

I was diagnosed stage 1a, total hysterectomy followed by 6 carboplatin/paclitaxel treatments. After several months they found cancer on some lymph nodes in my pelvis so I had 5 lots of stereotactic radiotherapy. This was effective in some spots but it had also spread including one supraclavicular (which is significant but I can't recall exactly why!!). It was now deemed incurable but manageable so I've started a two year stint of pembro and levatinib immunology. So far so good!! 

Thank you for your reply.I am so glad your new treatment is doing you good .I appreciate you taking the time to explain hope I didn't offened you 

Did they say anything more re the perioperative test. For me, the MRI scan showed up a prominent but not enlarged lymph node, and as a result I had.PET scan pre op. This didn’t show anything on lymph nodes so they decided not to touch in op, but blitz the pelvic ones post op. Appreciate we are all different here, and different processes/ tests etc but thought I would mention.