Hi everyone, just wanted to introduce myself. I'm a 52 year old woman from the North West of England. I had being going through the menopause for nearly 5 years and coping without any hrt, just after Xmas I started bleeding again and had very bad hormonal changes. I went to the Dr's to see if I could get some HRT. As I had been bleeding she sent me to a fast track cancer clinic as a precaution. After having an external and internal ultrasound it was thought that I had a fybroid. I was book in for a hysteroscopy. The consultant tried to get the fybroid out under local anesthetic bit couldn't as to much blood. She managed to take a biopsy. The biopsy came back as a high grade leiomyosarcoma. After now having an MRI and CT Scan I am happy to say it has not spread from my uterus. Today I find out if I will be discussed at this week's MDT meeting which takes place tomorrow. This has all been very scary and would love to hear from anyone else who has been through the same xx
Hello Nannytobe
Welcome to the Online Community and the Womb group.
I am sorry to hear of your diagnosis of leiomyoscarcoma. I remember feeling a bit all over the place when I had my diagnosis and there are lots of lovely ladies on here who will also understand how you are feeling and will want to offer support.
I will pop a link here to some information that you might find helpful.
Leiomyosarcoma | Macmillan Cancer Support
I hope that the MDT discuss your treatment at the meeting tomorrow and that you will find out what happens next. Most ladies on here are offered a hysterectomy and for me it happened fairly quickly.
We have a Support Line that is there from 8am-8pm daily and I can recommend giving it a call if you feel talking things through would help.
In the meantime, if there is anything you need, please do ask.
Jane
That's not too long to wait then. I felt much better once I knew what treatment I would be having. Let us know how you get on.
Good idea to focus on doing a journal- I found writing things down did help.
Jane
