Uterine cancer after breast cancer

Hi Rosie75

Welcome to the Womb group.

I am sorry to hear that you have had some bleeding and are having tests. It must be really hard to go through after your breast cancer. I hope that you do not have to wait too long to get the results from your hysteroscopy/biopsy.

It is understandable for your brain to be going a bit crazy now and to face the possibility of another cancer would be overwhelming for most people. 

So the positives- you were checked 9 months ago and were fine. So if there is something going on then it has only developed since then. And the main thing is that you have got checked out for the bleeding. You haven't left it- so well done. 

There can be other reasons for such heavy bleeding and hyperplasia (thickened womb lining) can be more common after some breast cancer treatments. For eg; It can be caused by taking tamoxifen etc. As you are premenopausal the irregular bleeding may in part be due to that. 

With such symptoms it is normal for the doctors to order the tests that you have had done as they need to rule out the most serious causes first. It may not be cancer, but if it is, the sooner it is found and the sooner it is treated, the better.

I hope that you do not have to wait too long to get the biopsy results back- mine took around a week. In the meantime if talking things through would help, then please give the Support Line a call. The number is below.

Hope this helps a bit 

Jane

Hi Jane and thank you. Just having someone help me to rationalise my thought processes helps. I have another week to wait for results which feels like it will be a long one. Pretty sure my brain is causing physical side effects to add to the stresses so aiming to keep busy and distract as much as possible.

Yes, sometimes it helps to write it down. Keeping busy can help. I remember noticing every little feeling in my body, while waiting and I am sure a lot was the worry. I hope that you do not have to wait too long, in the meantime we are here if you need us.

Jane

Hi Rosie,I am one of the class of 2017who still keeps an eye on this forum.My cancers happened the other way around to yours.Diagnosed with Serious Papillary in 2017; hysterectomy no further treatment.2021 on my 77fh birthday diagnosed triple negative breast cancer had mastectomy,no further trement,it would seem more common than I knew as I have spoken to a few woman with the same double diagnosis..Onwards and upwards is the way to go,hope you have good results.x

Thank you. Never wishing it on others but it does help to hear of people surviving similar diagnosis. Thanks for sharing.

Hi. I've also had breast cancer and been diagnosed with uterine cancer just recently.  I've had a CT and having MRI tomorrow.  Feeling very nervous to be honest. How are you getting on? 

Hello Stargazy,

Just read your post of 2 months ago.

I had breast cancer in 2022 and mastectomy, no more treatment.

I have had a radical hysterectomy in June and the histology showed some serous cancer - the same type  as you had in 2017. Can I please ask - did Oncology people recommend 2 chemo drugs and radiation to you then? And what stage was your cancer please?

They have offered both of those to me and I'm having a lot of stress deciding  re  the possible severe side effects. (I am a similar age to you).

I'd be so grateful for your reply  Thankyou!

Hi Rosie 75,

Re your post 2 months ago, I too have just had a radical hysterectomy - keyhole luckily and I got over it very quickly (few weeks).

I had HER2 breast cancer in late 2022 followed by mastectomy, no further treatment. I too didn't realise that the chances of getting uterine cancer were increased after breast cancer.

Good luck with your treatment which you probably have already started now.

Hi Rosie75,

I have only just seen your post. I was diagnosed with dcis in my right breast January 2021. Stage 2. Had over half my breast removed plus lymph nodes then radiotherapy and tamoxifen. October 2021 I started having vaginal  bleeding, no other symptoms. I had already gone through the menopause so contact my wonderful bcn who told me to stop tamoxifen straight away. 6 weeks later I was diagnosed with endometriod adenocarcinoma. Stage 1. I had a full hysterectomy including both ovaries, tubes & cervix a few weeks later.

It’s a massive shock to get a second primary cancer diagnosis when still recovering from the first. The NHS have been fantastic and I have open access to both breast and gynae clinics.

I have had a couple of scares since but all benign so I have Ned for 2.5 years now.

I wish you well.

I also had breast cancer in November 22, lumpectomy and radiotherapy. May 24, I had a hysterectomy for uterine cancer grade 3, stage 3a. 

Oncologist suggested that the benefit of chemo and radiotherapy would only be 10% so my husband and I decided to go with quality of life rather than the side effects and hospital visits.

We are happy with the decision and I will worry about my next check up nearer the time.

I am trying to live my life as well as I can and enjoy good times with my family.

I am 71 and it is perhaps an easier decision for me at this age. If I'd been 20 years younger, my decision might have been a lot different.

I hope you can make a decision that you can live happily with.

Best wishes. K.